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Fundraiser canned on claims disease affects only whites

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CTV.ca News Staff

Date: Tue. Nov. 25 2008 5:50 PM ET

Carleton University won't be holding a popular fundraiser to benefit cystic fibrosis, it was confirmed Tuesday, after the student council passed a motion falsely claiming the disease affects only white men.

In what journalism councillor Nick Bergamini calls an "incredibly divisive" move, the Council of Carleton University Students Association (CUSA) passed a motion at a meeting late Monday night that effectively cancelled the annual Shinerama fundraising campaign.

Shinerama events occur during the school's orientation week and proceeds go to the Canadian Cystic Fibrosis Foundation (CCFF).

The association raised the motion based on information it received from one of its former executive members that the disease affects only white people and mostly males, Bergamini told CTV.ca.

"I don't believe that you should be playing politics with a charity," Bergamini said during a phone interview from Ottawa. "It's the most un-political thing. It's something that's supposed to bring people together and now they've done something that's incredibly divisive."

It is correct to say that cystic fibrosis "does affect Caucasian populations primarily," according to Cathleen Morrison, CEO of the CCFF.

However, the term Caucasian includes people from South Asia, North Africa, the Persian Gulf and Israel, Morrison said.

"These are Caucasian populations," Morrison told CTV.ca. "These people do not have white skin. They have CF, it now seems, in the same ratios as other Caucasian people who do have white skin."

Cystic fibrosis, which is the most common genetic fatal disease in young people in Canada, affects just as many young girls as boys, Morrison added.

It is a chronic disease that primarily affects the lungs and digestive system. Only about half of patients live into their thirties and beyond.

According to Bergamini, the motion read that orientation week strives to be inclusive and volunteers should feel like their fundraising efforts are serving a diverse community.

However, the motion went on to say that "and whereas cystic fibrosis has been recently revealed to only affect white people and primarily men, be it resolved that: CUSA discontinue its support of this campaign."

CUSA president Brittany Smyth said the idea of changing next year's orientation fundraiser to focus on a different charity, perhaps a local cause, first came up about a year ago.

She said that the part of the motion that refers to why Shinerama has been cancelled is irrelevant, not part of the official meeting record and simply reflects the rationale of the councillor who raised the motion.

"It completely depends on the individual," Smyth told CTV.ca. "It's 100 per cent their opinion. Their opinion doesn't have to be fact or anything really. It's just how this individual felt."

Only the resolution is important, Smyth said, even though it appears councillors are endorsing the idea that support of cystic fibrosis be stopped because it is a white-man's disease.

"Speaking from the council perspective, the whereas motions weren't actually overly relevant when people were making a decision on what they wanted to do," Smyth said.

She also pointed out that the whereas clauses cannot be amended, and said if a resolution to drop Shinerama had been rejected, the issue could not have been raised again.

Calls to the Carleton University spokespeople have not been returned.

Shinerama began in 1964, and events are held at nearly 60 Canadian university and college campuses. Students shine shoes, wash cars and hold other fundraising events as part of the campaign. The program has raised nearly $19 million for the CCFF.

Carleton students have participated in Shinerama for 24 years and have raised nearly $1 million for the cause.

Morrison said the CCFF has valued past contributions from Carleton students and hopes to speak with members of the association about their decision.

"We're hoping that when the facts are before them that they will feel more comfortable," Morrison said.

Bergamini said he will try to raise a motion to reverse the decision at the CUSA's next meeting. However, the council is the highest decision-making body and is the primary organizer of orientation week events and so he, and even the university, have little recourse, he said.

"So unfortunately this appears to be a final decision."

Comments are now closed for this story

J.C.
said

What does it matter what colour of skin the disease effects? It is a disease that needs to have a cure found just like any other.
I find their decision rather discriminatory!! What's next? We don't worry about a disease like sickel cell anemia because it only mostly affects blacks!!!
Ridiculous!!


Lon
said

everybody is so damn touchy.


Matt
said

Wow! Way to go Carlton! You guys are ridiculous. I am a university student and I think Shinerama is an awesome event. Just because this disease primarily effects a certain segment of the population should not mean that its an unworthy cause. I am glad I am not a Carlton student today!! You guys make me sick. THINK ABOUT WHAT YOU ARE SAYING! This disease doesn't affect everyone, therefore its unworthy of our support. All I can say is wow.


Janet
said

so it’s ok for white men to suffer from a disease? How is that not discriminatory?


Just another white dude
said

While they are at it, why doesn't the Council of Carleton University Students Association (CUSA) say that we should stop research on breast cancer since it mainly afflicts women, and prostate cancer since its a man's disease?

Saying that a charity isn't worth supporting based on the claim that cystic fibrosis is a white mans disease isn't far off saying that it doesn't matter if a white man dies since there will always be another to take his place.

How heartless! If I was a student at Carleton University I would be ashamed of the actions of my student association.


Been There
said

Having know 2 people with this condition (both women) - one of them just passing a week ago. It is sad to see that people who do not know what the individuals with CF go through on a daily basis make comments and directly / indirectly effect the fundraising efforts of others.

I hope this does get overturned as it a very worthy cause, even though it seems that it is unlikely to happen.




John Doe
said

Because if a school stopped sponsoring a charity targeting an ailment afflicting any specific group of people more than another it would be appropriate, right?


Biochemist in BC
said

Speaking as someone with a background in genetics and molecular biology, I can say that CF has an equal chance of affecting anyone who has inherited two copies of the CF-mutated alleles. This motion is completely ridiculous.


Josh B, Ottawa
said

As a Carleton student, this really does not surprise me. There is huge opposition to CUSA on campus, and they are the least accountable organization I have ever witnessed in my life. It's news stories like this that make me ashamed to call myself a member of a community that allows completely illegitimate student bodies such as this to exist. I often find myself wanting to laugh at the decisions CUSA passes down, as they are so far flung from reality they could pass for comedy. When a political organization plagued with ignorance attempts to be so radically inclusive it becomes exclusive, then it's time to re-evaluate.


JC in Ottawa
said

They have forgotten that Charity is to give without receiving, thus they confuse political agenda with those suffering and in real need.

I wonder which charity they will replace it with (Beer Drinking Rallies).


K D
said

hmm so is Carlton going to ban fundraising for prostate cancer or breast cancer because it affects one gender more than another. What about aids then, since there is such an epidemic of aids/hiv in africa does that mean that aids only mainly affects africans? Since when does statistical anomolies play any part in determining who or what is a good chairty cause? Aids can affect anyone, whole families are affected by one member getting breast or prostate cancer. I would love to see the outcry if Carlton had banned Aids/ HIV charities due to the a racial based statistic.


Lee in Calgary
said

Thanks for proving the obvious...the only group of people you can get away with discriminating against is middle aged white men...every other group is out of bounds.

I'm sure your parents are very proud and happy with the education you're receiving.




Linda
said

For many years now I've heard people say that white anglo-saxon men under the age of 50 are becoming the most discriminated group in North America, but as a woman I was always a little skeptical of that idea. Obviously I was a little out of touch. What happened here at Carleton did not and could not occur in a vacumn. The idea that it is perfectly acceptable to discriminate against white men now must be far more pervasive than anyone thought.

White men certainly did have it far too good for far too long, but efforts to "balance the books" can NOT include reverse discrimination and bigotry.


Westner
said

So I suppose we should stop all fundraisng for breast cancer to as it only affect women?


Tim
said

You can lead a student to a university, but you can't make them become educated.


Polly
said

WOW - Political Correctness has gotten way way WAY out of hand!!!!

What kind of no mind comes up with this stuff?

So 'Juvenile Diabetes' shouldn't be supported because ONLY kids suffer from it? (A misconception that only children suffer from it by the way) OR Breast Cancer because mostly women are afflicted (men have been diagnosed but it's rare) and conversely, prostate cancer sufferers are only men so they don't warrant the money required for research?????

Our society needs to stop being so hyper-sensitive to every darn thing - we are all different on the outside but we all bleed the same...internally we are designed relatively alike...

It's days like this I'm not convinced 'humans' are the superior/most intelligent creatures on the species list.
*sigh*


Ross Wilkie
said

Typical of decisions made of ignorance.
CF needs all the help they can get. It seems strange a minority of students at one universiy is correct and all other students attending university are wrong supporting CF.
Radicals seem to rule even if they are ignorant of what they are talking about


Kevin
said

The trouble here isn't the decision, it's the mindset of the individual who put the motion forward. CUSA has the power to decide where and when to support a charity. The article points out that the language of the motion cannot be amended and there was prior discussion of changing charities. It's too bad CCFF suffers but the person I really feel for is the one who put the motion forward. Did they think that people with CF only associate with 'whites'? CF sufferers have friends and mates and they suffer too. Maybe while at Carleton they can learn some compassion along with the rhetoric.


nc
said

I just attended a CF fund raising event for the second year. The woman that accepted the $100000 cheque has CF and her young brother died at a very early age due to CF.
It is sad to see that even illnesses have a colour of skin. I guess we have not learned much, since the famous speech of Martin Luther King. "... I have a dream that one day people will be judged by their character and not by the colour of their skin."



Dale Wilson - Edmonton
said

You know, if these narrow minded individuals at Carleton want to stop raising funds for this cause, so be it. They show themselves to be small time individuals trying to be big time - and yet come across as being incredibly petty and narrow minded. Shame on your guys.


Laurier Student
said

It really is sad that it has come to this. Fundraising is done to help people, it doesn't matter who it helps as long as it helps. Cutting off a tradition such as this just because of political/racial ideas is horrible. I participated in Shinearama at Wilfred Laurier and nobody cared who may or may not be affected it didn't matter who could contract the desease, male/female, race or ethnicity, as long as the people are getting the help that is needed and the money is being used to develop a cure. Shinearama has become an annual event and people look forward to that time to donate to CF.

When politics and racial issues interrupt people trying to donate to a cause, there is a major problem. A University located in the Capital of our country should be ashamed at this decision.


Randy from Ontario
said

So I am a caucasian male, does that mean I should not give money to charities that do not help white men.

This is crap. Can you imagine if a charity geared to help black men (sickle cell) was cancelled? Why are white men always getting the short end of the equality stick.


Steve - Montreal
said

Ah yes, the leaders of tomorrow have spoken. As a scientist focusing on airway diseases I'm shocked at the short sightedness of Carleton. When is this "we don't want to upset everyone" attitude going to end. People are dying.


J.B., Toronto
said

It makes me sad that the university would cancel such an event. I went to the school that begun Shinerama all those years ago, Laurier, and participated. Despite the cold temperatures that day, that was one of the funnest days of O-Week and the other activities of the week were also directed towards raising money for this cause. Even now I continue to seek out the university students participating in this each year. It makes me sad that first years at Carleton will not get the opportunity to start their university careers off helping someone else. As it happened there was someone in my year, a girl, who is afflicted with this disease so it hit even closer to home.


Toby
said

Hey Carleton, don't bother to solicit me for money this year and any future years. From today forward you will get diddly squat from me.


Mike in ON
said

From the article: "According to Bergamini, the motion read that orientation week strives to be inclusive and volunteers should feel like their fundraising efforts are serving a diverse community.

However, the motion went on to say that "and whereas cystic fibrosis has been recently revealed to only affect white people and primarily men, be it resolved that: CUSA discontinue its support of this campaign."

So, CUSA strives to be inclusive - unless, of course, you're a caucasian male. I guess some animals ARE more equal than others, Mr. Orwell.

As other posters have already mentioned, not only is CUSA's position discriminatory, it is also ill-founded. Sounds to me like an organization that's about to lose its funding.



Lee In Ottawa
said

I find it odd that an organization that relies greatly on the donations from alumni that they would jeaopardize such needed revenues by making such a short-sighted decision.

I wish that I could say that I am surprized by their actions but it is reflective of political correctness run amuck. I am deeply disappointed by this decision as it points to a lack of understanding on the parts of the students who sit on the coucil. I find their decision disrespectful and they should be ashamed of their thoughtless course of action.
For shame.


Rod
said

What a bunch of crap! I lost a 9 month old daughter to CF back in 1960. Sure she was white but she obviously was not male. I've known a number of CF sufferers over the years but I would be hard pressed to say the majority were male.


Kalyn
said

I'm a WHITE FEMALE with CF... does that make me an anomaly? These people should have done their homework before they made these claims to cut the shinerama. Obviously they didn't think anyone would care. I'll tell you, we care. Every dollar counts my friends!!


Mike in Ottawa
said

I'm happy to see all posters are as angry as I am! You know, if they want to change who they fundraise for, fine, it's their decision. But when they pass a racist and factually incorrect motion (with grammatical errors) as their reason for doing so, what kind of precedent are they setting??


K Brown
said

I felt sick to my stomach reading this, and not very proud of Carleton as an alumni.

Charities help those in need, free from prejudice. Don't open a pandora's box.


Frank
said

Unbelievable that this kind of mindset prevails. Perhaps the truest legacy of Political Correctness is that it is currently being used by the neo-con movement to tarnish liberalism as intolerant and excessive. This decision only provides fodder for that cause.

For years Carleton has been working to improve its image as a viable academic institution. With this decision, it has taken 5 steps back.


Biolgoist in Prince George, B.C.
said

I find it unbelievable that in a supposed bastion of tolerance and rationale thought that such an asinine decision could be made. So what is the next logical step at Carleton - excluding from charitable funding ANY disease that is more prevalent in any one group? A prime example of trying to follow the politically correct cookbook without the tempering effect of using one's mind. White men are actually people too.


Suzie
said

First of all they are dead wrong!!! My daughter is bi-racial and she has just been diagnosed with CF.I hope they change their minds...we need research soooo much!!


Ben
said

Let's not forget that the majority of university students are still basically children, and it is reflected in things such as this. In a few years they'll grow up, enter the real world, and realize that things are very different from the sheltered life they are still living. For all of us who are amazed at or appalled by this decision, just remember that you were young once and show them some grace.


Acroyear
said

Carleton University... creating the leaders of tomorrow.

Is it too late to move to England?

This is so utter ridiculous that I'm left without words that I can use in a G-rated public forum.

Shame on every member of the CUSA who passed this.

And I say the remaining students of Carleton should get together and do their own fund raiser for CF and thumb their noses at their so called leadership.

Unbelievable!


Marsha
said

CUSA's rationale is absurd, and the university should not tolerate it. I'm all for freedom when it's attached to a sense of responsibility, But is there not something in the Carleton code that gives the university some control in situations such as this? The whole point of our Canadian society is that no group is discriminated against. Aren't the laws against discrimination supposed to protect against such folly?


Angela in Ottawa
said

I graduated from UNSJ in 2002 and Carleton in 2004. All I have to say is you don't need to be sending me any more "please send us money" letters. If this is the kind of information that comes from students you need a lot more than simple money.... maybe try another university and get an education.


James
said

I think this decision qualifies as racially motivated by a supposedly all inclusive organization. This leaves a black eye on Carleton University and its Students Association.


Chanel
said

I wouldn't go so far as to say that white men always get the short end of the equality stick. It is in fact the opposite my friend. The problem here is that by discriminating against them because of this does not make things better for anyone, caucasian or not. White men don't need to be dragged down, ethnic people and women need to be raised up!


woman with CF
said

I think that everybody is forgetting the facts of CF... it is not just a "white-man" disease!! It affects children, adults, males and females. Yes, it is typically a caucasian disease, but it is spreading to different populations as people of different cultures and backgrounds have children together... please don't get caught up in the "discrimination", remember how serious it is, and how many Canadians are affected, and how Shinerama is such a wonderful event and provides hope for every individual, man or woman, with CF.


Doug
said

This does not surprise me in the least, if you've been on a university campus in the last ten years then you know exactly what I mean, whether you support it or not. Just last week there was a story about Queen's sending around people who listen in on others conversations just in case they use derogatory terms. I'm embarrased to say I'm a University graduate as it is NOT a place of free debate, or even tolerance as it claims. I'm surprised the student council didn't blame George Bush or Stphen Harper for CF since they blame pretty much everything else on them, the ironic part is these are the clowns who used to go around campus looking for more government money to support their tuition payments.


Carl Kazmierczak
said

Being a former CUSA executive, orientation Leader and member of council for 3 years I am completely disgusted at this council and executive.
It makes me ashamed of my alma mater.



Cal in Ottawa
said

From what my son tells me, CUSO has a well-earned reputation for being, shall we say, left of the NDP in orientation. This move proves the case.
For Ms Smyth to say that the wording didn't matter is a convenient excuse, but one that does not hold up to scrutiny. On a radio interview she said it was a student of Haitian background that instigated this. Now, if there was a motion proposed that had racist implications against a visible minority, does anyone think that the wording would not matter? Give us some credit Ms Smyth. You push political correctness much too far.

At least there was one member who had some integrity and voted against the resolution.

I hope the students of this fine university will send Ms Smyth and her ilk a very loud and clear message.


Colin M
said

Hey CUSA;

Enjoy the ride for the next few weeks...

It's going to be bumpy.

Nothing like a bold stance against a charity!


Ken
said

I am non-caucasian. I find this ridiculous. People in need are people in need. There should be no discrimination.


dcp
said

Rather than criticize CUSA for ending the association with CF, perhaps we should thank them for all the money they have raised over the years? Perhaps it is now reasonable to select another charity for their support?


Ottawa KMH
said

The decision of CUSA is wrong on so many levels. First of all, CF is a white man's disease as much as AIDS is a gay man's disease. Second - charity is an exercise of the heart and not of politics. Third - bigotry is offensive regardless of who is targeted.

Given that CUSA has displayed a remarkable capacity for public idiocy, I would like to think that other Carleton students would do their best to voice opposition to this decision before the value of their education is devalued by association.


Ryan P.
said

Maybe someone should launch a human rights complaint against the Student Association? Seems to be along the trendlines of recent complaints.


Ter Ry
said

The decision seriously calls into question the quality of the students attending and representing Carleton.
A little research would have clarified the nature of CF and permitted a balanced discaussion and educated decision. Carleton may not have a Sciences program, but ever hear of the internet?



Jenna from Carleton
said

This is not the first time that CUSA has made stupid moves. I am ashamed to be associated with a group that "represents" the students.
Get your facts straight before you make a decision CUSA.


Clay in Calgary
said

When I moved to Ottawa to do a professional degree (at the University of Ottawa) I was first exposed to all the jokes about how "Carleton puts the K into Quality" and so on. At the time I thought it was all just cute inter-university trash-talking.

I am starting to wonder though... this is one of the strangest, most ridiculous things I have seen come from a university student government. Which says a lot since university student governments are a guaranteed source of the sublime and downright ridiculous.


Johnnie Oil
said

Scary to think that these people may become the the leaders of our future government.
Political correctness is a façade constructed in opposition to reality and sold as “tolerance.” Because of this, its purveyors are given to moral relevance and all who reject it are branded as “intolerant.” When properly implemented, it stifles our ability to think clearly.

We must understand that a major tenet of political correctness is that there is nothing more wrong than the act of pointing out what is wrong. Political correctness is understandably hostile to facts and its followers quite intolerant of anyone who refuses to budge on the fact that absolutes exist; for the rejection of absolutes is a most convenient way to open discussions about "race based deseases" or “the non-existence of God” in university classrooms for example throughout the country.

This is not to insinuate that the problem is only in university classrooms. Political correctness reigns supreme throughout our educational system. “Facts are stubborn things, and whatever may your wishes, your inclinations, or the dictates of your passions, they cannot change the state of facts and evidence.” To this a misguided, politically correct university student board can make such a ridiculas statement and stop such a worthy cause based on intolerance thought.

This is the power of political correctness in the hands of those who know how to use it -- it literally silences opposition. And this brings us to a second point: political correctness is not just a façade sold as tolerance, but a way to heave guilt upon soft consciences, thereby stagnating courage and the free exchange of ideas. Anyone with their eyes halfway open saw this same tactic used again and again through the past election cycle.



Ze
said

So they passed the motion who cares if you want to give to a specific charity then do it. As the pres lady said the way it was phrase may be bad in the part of the person who brought the motion but the fact that they wanted to change charities still stands so let them change it. In am still giving to the Brest cancer society and i been doing that for the past 5 years so if they want to change charities over 25 years then let them. Stop making small issues into huge ones.


Ian K
said

The best ways to address such a monstrous act of political correctness are (a) Carleton students flood their student council with demands for a retraction on some technical ground and (b) Carleton alumni en masse refuse any further financial support and (c) a complaint against the students' union to the Ontario Human Rights Commission.

The one thing we Canadians cannot do is to simply let this go by. It could set a precedent we will soon regret.


E L
said

It would seem to me that this discrimination at the highest and it should be brought to the human rights commission. Far less discriminating decisions have been dealt with by the commission. CUSA should have to disband for such discrimination. I will not be supporting any fund raiser connected to Carlton in the future.


Sarah
said

This is also the same student's association that has censoriously banned Pro-Life clubs from organizing or appearing on campus because the radicals on the council won't permit opposing views to their iron-fisted leftist doctrine.

Are any of you surprised by this? The same rot goes on all across the country. Councils elected with less than 5% of the vote seem to have time to organize for radical stands on every possible issue (paid for with student money) and yet can't ever seem to balance a budget.

Maybe the *real* adults should be running things.


jane
said

people are missing the point of what Carleton and Cusa are trying to say which is that they have raised so much money for one charity, why not share the wealth with other charities???
cusa and carleton framed the issue incorrectly, race did not need to be brought into this.


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