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CTV News: The teenager has become an inspiration

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CTV.ca News Staff

Date: Thu. Feb. 21 2008 10:45 AM ET

The family of a 13-year-old Canadian girl with autism who learned to communicate through her laptop has been overwhelmed by the public response to her story -- and insists she is doing it without any help.

Carly Fleischmann is unable to verbally communicate, but since finding a way to "talk" by typing messages on a computer, she has been providing long-sought-after insight into what it feels like to have autism. She said it feels like "being in a room with the stereo on full blast" or like her legs are on fire and she is covered with ants.

CTV News first aired the story of Carly on Sunday. The Toronto family's story was picked up Tuesday night on ABC News in the United States. Since then, people living with the condition and media outlets around the world have taken notice of what Carly's story could indicate for the future of autism treatment.

"Thank you Carly for being so brave and letting us read some of your thoughts!!!" wrote one woman named Gretchen, one of many to email CTV in response to Carly's amazing breakthrough. "I have a 2 1/2 year old autistic daughter but she is verbal. She still can't tell us what is wrong or how she is feeling. I love this story!! As a mom it gave me a better insight to this disorder!"

"This girl and what she has to say absolutely breaks my heart," said another reader named "T". "I can understand how she feels, not because I have an autistic child, but I can feel from her writing how she desperately wants just to be like everybody else, but can't."

"As a mother of an autistic child myself, my hope is that some of our political leaders will see stories like this one and be moved to take meaningful action to ensure that all children with autism have access to the services they need to reach their full potential," wrote a mother named Laura.

Carly's father, Arthur, says his daughter has been touched by the reponse.

"Most of the comments have been about how inspirational Carly was, the kind of hope that she gives to families with children with autism, and that really hit an emotional chord with us," he said Wednesday evening.

"This kind of reaction was so inspiring to Carly, it's given her an incredible confidence boost. One of the key issues that people with disabilities have, I think, is one of self-esteem, and understanding what their role in society is. And hearing what an inspiration she is to others has made her feel incredibly good about herself."

Arthur adds that the response is further inspiring her to want to help others with autism.

"I hope this is a watershed event for her," he says. "She's clearly a highly intelligent and creative person. And so much of her life has been defined by her disability that I think that this type of event helps her to find what her potential is, and her ability to advocate for others like herself."

Alongside the well-wishers, there have been a handful of those who are skeptical about Carly's achievements, some wondering if Carly is being cued -- either consciously or unconsciously -- about what to write.

Carly's mother Tammy says that is simply not the case. She says Carly often writes email by herself, with no one else in the room, and when there is someone there to help here, they are there primarily to help Carly focus, not to tell her what to say.

Tammy says she knows that Carly is not simply repeating phrases she's been taught because Carly has demonstrated she's learning things on her own.

"My daughter knows about all kinds of things we have not told her about and she writes spontaneously about them," Tammy wrote, responding to a comment left by a viewer on ABC's website. "For instance, we told her we were taking her to New York to see a doctor there and she wrote she wanted to see Ground Zero and the lady with the torch. We had no idea she knew these things.

"I have no incentive for making this up or embellishing her accomplishments and neither do the huge team of doctors and other professionals who have seen Carly over the years."

Dr. Wendy Roberts, a developmental paediatrician at the Autism Research Unit at the Hospital for Sick Children in Toronto, has reviewed Carly's writings and watched video of her and says she is convinced that Carly is not being coached in her writings.

"She has documented receptive language skills consistent with what she writes. No one is touching her or giving eye signals (about which) letters to choose," she says.

Experts in the specialized form of autism therapy Carly has undergone, called Applied Behaviour Analysis, say they're not sure whether her unusual language abilities make her a rare case or whether her new writing skills are the result of her intensive training.

But as people touched by her story from around the world can attest, Carly Fleischmann has at the very least provided a window of hope for thousands who want to know what living with autism is really like.

CTV.ca readers with questions for Carly can send them to health@ctv.ca. She will do her best to respond later this week to some of them and we will post her comments.

Comments are now closed for this story

George Ham
said

I wept when I read her story.
Even so, I wondered how she developed such a mature vocabulary?
Is it a miracle or some other mystical explanation?


Maureen Caron
said

Carly, I saw your story the other night on CTV, and I was moved to tears,not tears of sadness, but, tears of joy for you. I am happy to know that you are the voice of autism, and are able to tell the world what it's like to live with autism. You have given indepth insight to what the world only sees physically and doesn't see emotionally, as a parent of 2 autistic boys I am given hope that they too can accomplish as much as you did Carly, Thank You.


Leslie Yeager
said

Way to go girl!


Earl Robert
said

With Carly's amazing breakthrough I'm sure that she will be an asset to the Doctors in their search for improved medication and a cure. My love and best wishes to you Carly.
YOU GO GIRL!



wende
said

I am really impressed with Carly. Why should we always doubt what can be done. I have known a young fellow that has autism, he is able to talk, he has a mild condition of it, but I don't know if he has ever told anyone what it feels like to have autism. I believe deep inside Carly there is someone that wants to share apart of herself and she wants to be normal. She wants help to get better.



Dale
said

AWESOME!!!!!


Kathryn
said

I am thrilled for Carly and her family. My son was misdiagnosed twenty years ago by a Toronto doctor who said to put him in an instution and forget about him. We perserved but were very fortunate to have met Dr. Wendy Roberts and the fabulous team at Sick Kids. Today our son is going to be a policeman. Never give up
always stay strong.
Bless you and your family!



Eric
said

Her grammar is far better than most 13 year olds.I hope this is genuine, but I too am skeptical.


Dana Woodhouse-Nagy
said

Why is everyone so surprised that inside an autistic person is an articulate, interesting, emotive individual? And, no, this is not something new. I refer everyone to Tito Mukhopadhyay and to www.halo-soma.org. There are techniques to teach autistic individuals to communicate. One day, my son will be one of them.


Aimée
said

It is such an inspirational story. Way to go Carly :)It is not simply Carly that deserves congratulations but her parents as well for never giving up on their child regardless of what others have to say. Great parents help their children succeed no matter what and Carly's parents are no exception. So great to hear that there is some good left in the world and I am grateful that ctv reported it :)


Lorraine Harrietha
said

Hi, I am an educational assistant with 18 years experience working with students on the autism spectrum. These young people need to have more services available to them and their parents to reach their full potential. I currently work with a 15 year old boy with autism. I was told that he was non-verbal. Well, surprising enough he has spoken in sentences to me. If he is motivated in wanting something bad enough he will speak. I just wished that he could get the help he so badly needs to start comunicating verbally. I do use boardmaker pics with him. He understand spoken words and is a very bright, sensitive young man. When I read and saw the video on Carly, it didn't surprise me that she could articulate in writing how she felt. It is so vital that these children get the assistance they need at a very young age and continue into their adult life. To Carly, thank you very much for your beautiful, uplifting and encouraging story. Mrs. Lorraine Harrietha


Don
said

This kind of thing should be sponsored by the gov't at young ages, autistic children's treatment and development in this country is a disgrace and scar. We need to care for these children, and autistic adults as well, as best we can. We are nowhere near that currently.


James H
said

I don't usually post comments on here, because usually they've already been mangled by a debate over the rights and wrongs of this or that. But in this case, I just have to say this story is absolutely and utterly amazing. I'm blind myself, and people are surprised sometimes that I can manage to use a computer. But to use it in the manner in which she's done, that's both very admirable and amazing beyond words. I don't know if these comments get to her or anyone who knows her at all, but if they do, I hope she can find some method of telling her story to anyone who'll listen. There's a whole lot that can be learned here, and not just about autism. If Carly, or her parents even, would like a place to be able to keep everyone informed and still maintain some degree of privacy, I have all manner of website space I'm not using. I'd be more than happy to put it to a very good use at no cost whatsoever.


Bernie Mullen
said

What a true blessing. Thanks for sharing Carly with us. She is a beautiful girl who has a lesson for all of us to learn. We have all heard the saying.... Don't judge a book by the cover. Nothing is closer to the truth. Carly, continue on your journey to teach us. You are amazing in all that you do. Thanks again.


Therese Boudreau
said

Carly, I am so proud of you! I am a teacher and I know sharing your story will help teachers and students understand autism and perhaps not be so fearful. You are an inspiration and I wanted to thank-you!


-Brian, in Brantford, ON
said

Carly's ability shows that it is not a question of "cure", at all, but of assisting a person with autism to develop their full potential within their own personal autonomy, letting them do most of the accomplishments of life by themselves, as individuals, without any attempt to "rid" them of this ability called autism.

It's the commmunication that is the problem--not the autism, and the sooner society, as a whole, accepts that, the sooner millions of others like Carly will benefit enormously from the new-found acceptance and respect from all quarters.

This, hopefully sooner than later, will show that autism is in no way a "devastating" illness, but just a social issue that is often hindered by lack of communication on all fronts--in speaking, writing, and "getting through to others".

As a person, myself, on the autistic spectrum, I know what it is like trying to communicate, often to no avail, when others are not willing to listen to what an autistic person is saying (or why).


KLS
said

I love the story about crawling into bed with your sister! If I had to describe you, I would say that you are a completely normal child ''with autism''. I hope you continue to make forward progress, helping yourself and others. Never give up!


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Carly, uses a computer to communicate with her family, a rarity amongst those suffering from autism.

Carly's Writing

A 13-year-old girl starts to write and opens a new window on autism.

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