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A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient. A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient.

N.L. to fund study of controversial MS procedure

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CTV National News: Avis Favaro on the funding
Provincial health ministers met in Newfoundland and have agreed to fast-track studies on a controversial treatment for multiple sclerosis, but Newfoundland and Labrador went an extra step. The province announced that it will spend more than $300,000 to track the progress of patients who've had the treatment outside of Canada.
NTV News: MS patients receive positive response
Two MS patients who have undergone a controversial treatment for the debilitating disease have presented Newfoundland PC MP Jerome Kennedy with a petition from suffers. An announcement on new testing procedures is expected later today.

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A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient. A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient.

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A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient.

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Date: Mon. Sep. 13 2010 7:58 PM ET

Newfoundland and Labrador plans to fund a study to observe how the controversial "liberation treatment" affects patients with multiple sclerosis, the government announced Monday.

The purpose of the provincially-based, observational study will be to evaluate how the therapy affects the symptoms and progression of MS in patients who choose to undergo the treatment. The government will not pay for patients to have the treatment performed; only to record what happens to those who undergo the treatment on their own.

Up to $320,000 will be spent on the study, which will be conducted by neurologists. The government says it will contribute more money if required.

"Our government recognizes the significant impact that MS has on those who suffer from the disease as well as their families, and we are aware of the significant concern they have about the length of time it will likely take to complete research on the liberation procedure," NL Health Minister Jerome Kennedy said in a news release.

"By funding this non-interventional clinical trial (observational study), we are attempting to do our part to add to, and perhaps expedite, the research that is currently being done in this area."

The announcement comes as health ministers from across Canada meet in St. John's with their federal counterpart, Leona Aglukkaq.

Many of those ministers are grappling with whether to go ahead and fund their own studies into the controversial treatment and CCSVI, the theory that blocked neck veins play a role in MS. Earlier this month, the federal government announced it would hold off on funding clinical trials of the controversial procedure.

Ottawa's decision has been met with outrage by some MS patients, who say the only way to clear up the questions about the treatment is to fund high-quality trials.

Saskatchewan, which has one of the highest rates of MS in the country, has already committed to backing clinical trials, even without funding from the federal government.

Saskatchewan Health Minister Don McMorris has said his province wants to partner with other provinces so that trials can be held in Canada.

Isotopes also on meeting agenda

Among other topics expected to be on the agenda of discussion at the two-day meeting is the fallout from last year's medical isotopes shortage.

Many of the provinces incurred additional costs during the year-long shutdown of the Chalk River, Ont., nuclear reactor; now, some are seeking compensation from Ottawa, whose responsibility it is to ensure a stable supply of isotopes.

Comments are now closed for this story

adrifter
said

I'm originally from Newfoundland, so don't think this is a gratuitous anti-Newfoundland comment. I have my doubts about the health system in Newfoundland, and would therefore have my doubts about the results of any study. Everyone knows testing of women for breast cancer has been a shameful disaster. My mother had to wait six weeks in hospital for heart surgery because there were not enough nurses. And Danny Willams scampered off to Florida when he was sick. Taking a cue from Danny, mabye a study of this MS procedure at some U.S. university might be a better idea.


Paul
said

What is the hidden agenda of the MS establishment? Some hope arises for those who suffer after long last and all I have heard are negative comments from those in power. WHY?? Let's lead the way and help those who can't help themselves.


peter in MB
said

(Newfoundland and Labrador plans to fund a study to observe how the controversial "liberation treatment" affects). What is so controversial about studying a treatment that might work? If it was not for experimenting with new forms of treatment we would still be curing a broken leg with a hacksaw.


oddmelee
said

Canada will study treatment for years look at cancer it has had trials for years maybe the drug companies do not want to find a cure if they find a cure for all cancers--- it will probably treat a lot of other ailments-so let the trials begin for CCSVI


Wheelchairavenger
said

"conducted by neurologists"???

I have one more suggestion: *Inquiries on the insiders frauds will be conducted by the Wall Street's traders"
Not bad, or what?


M in AB
said

I really hope for those with MS that this treatment works. I think the government should fund it. Those seeking medical treament overseas, contracting a superbug such as the one from New Delhi, then coming back to Canada and spreading it, will cost our health care system a lot more in the long run than the Liberation treatment.


marko
said

the neuro's are going to run it. well then i already know the results.


Glen in Vancouver
said

Let see, Live with a condition that gives me a constantly falling quality of life, and with ultimately lead to my demise and tax an already overburdened healthcare system for constant and ongoing treatment that is ineffective and at best bandaid like (treating symptom only).Or Risk an Unproven treatment that in the worst case senario could kill me (not like my current path is not going there anyway!), but has show anecdotally( on a very large scale I might add!) could lead to a massive regression in my symptoms and give me my life back, all for a one time cost!hmm...decisions...decisions


Sheryl McD, Sunshine Coast BC
said

What kind of country says it won't fund trials of something which could dramatically improve the quality of life of 75,000 of its citizens? Its not brain surgery, its simple angioplasty, already in practice for 30 years... and as an informed adult with MS I am so angry with "drug daddies" and a weak government telling me what therapies I should pursue, and then willfully blocking knowledge. Other Canadians have this procedure every day, why deny me?


Loretta
said

I want to have the procedure done!In Canada! I will pay!!!Please!At least tested! Before I have to jump on a plane and go to......


Niagara George
said

I have read numerous articles over the years about cancer research and accusations that cancer societies and drug company researchers were guilty of cover-ups for a variety of life-saving procedures. One hopes this is not true and tries to pass it off as words from a quack who is seeking publicity for the newest useless, but costly 'cure.' Then along came Dr. Zamboni who quietly went about reducing the symptoms of MS in hundreds of people before we, in North America, became aware of his procedure. I remember the very first news reports included mocking comments from the American MS Society and only slightly kinder words from the Canadian office. When the federal government decided to not proceed with research funding, it was the Canadian MS Society that led the attack on Dr. Zamboni's work. Perhaps those articles from the past do hold more than a grain of truth.


Mark Smith (Montreal, PQ)
said

who knows if this treatment really works or not. Anecdotal evidence is strong so it warrants research. I have no idea why everyone is so against researching something that shows promise? It could very well be bogus of course, but it could very well not be. Take a chance.


tom hennessy
said

If you think the simple fact the people WANT these studies is going to stand in the way of those people who DON'T want these studies well. Look what just happened. I wonder if Cal supported the MS treatment."Sun Country Health Region CEO firedCal Tant, the CEO of the Sun Country Health Region, based in Weyburn, Sask., has been fired.Tant was terminated Thursday after the board for the region concluded it had "lost trust and confidence" in his leadership"


Rickey K
said

I am also a victim of M.S. I too will have to leave my country to go to a foreign land to have a treatment that is offered here in Canada to anyone who needs it, EXCEPT IF YOU HAVE M.S. Most people that have the disease say test it on me! If tests are what we need, TEST IT ON ME!! Hundreds of people have already gone elsewhere for the procedure at enormous cost to themselves and the news is all good, but if you need more tests, TEST IT ON ME!!


dave
said

my sisterinlaw just had this done, she feels 80%better with in days. She went to INDIA to have it done.no more tingling in feet, no spells since. This appears to work.


Brad
said

As a person with MS, I believe that any all treatments should be made avalible to people. It is easy for people to sit on the sidelines and pass judgement on the validity of this treatment. The only medications avalible at this time only offer
minor help and are very expensive, some of which come with severe side effects. All we are asking for is the right to be able to have the proceedure done in Canada. If I had a blocked vein and did not have MS I would be able to have it taken care of.


Mexico Clinics
said

I am a Canadian working for a US airline and we have seen an increase in passengers going into Mexico for treatment of MS. They are travelling from all points in Canada to Mexico and spending their own money on this treatment. It's scary. I think we should fund these tests, and now.


paul
said

As a victim of MS I can say one thing. Bring this treatment now!There is no quackery,simply a good doctor who cared enough.It is very difficult to find anyone who gives a crap about anything but themselves these days,so I consider Dr Zamboni a hero. He has done something very anti establishment,offered a treatment that needs no prescription and the drug companies make nothing on it


Mike D
said

The 'CCSVI' treatment does have a lot of validity! First of all, this treatment is a basic procedure that focuses on a very real problem that anyone who doesn't have MS can easily have - narrowed veins. There is an absolute need and urgency for real treatments such as this one. Not more drugs. So many people are travelling around the world to have this treatment and almost all are reporting significant results that have immediately enhanced their overall well being. If you had MS, wouldn't you want to have a say in whether or not you can obtain this treatment in your own country? I certainly would want to.


Curtis Brooks
said

If we are not going to fund this because there is no evidence that it works, how do we ever find out if it works? The MS society and others are deathly afraid it does work and are obviously doing there best to beat this theory down and make it go away. As Mr. Wall has stated Saskatchewan will find out first hand one way or the other if this helps people with MS. Now who wants to help and who wants to sit and do nothing!


Father of an MS Patient.
said

Provinces are free to fund whatever "medical" treatment they wish. Simple fact is that this is a proceedure with extremely doubtfull validity. Until it has be studied and reputably reported on, it will not be receiving directed federal fundign. I have not problem with this decision. we need real medical treatments not quakery.


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