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A scan shows the veins in the neck that are involved in the 'Liberation Treatment' for MS. Dr. Sandy McDonald, cardiovascular surgeon, appears on CTV's Canada AM, Wednesday, Sept. 1, 2001. A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient.

Feds not convinced MS treatment is safe, effective

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CTV News Video

CTV National News: Feds won't fund clinical trials
Health officials disappointed and angered many Canadians who suffer from multiple sclerosis when they announced they would not fund clinical studies of a new and controversial treatment. The federal health minister says the issue will be re-visited in the future.
CTV Edmonton: Susan Amerongen reports
A Stony Plain nurse is back home after receiving a controversial new treatment for multiple sclerosis in Costa Rica.
Canada AM: Dr. Sandy McDonald, surgeon
A doctor who supports the controversial 'Liberation Treatment' for MS explains why he feels the CIHR and MS Society of Canada's decision to not fund clinical trials is a mistake.
CTV National News: Avis Favaro on the funding
Canadians living with MS will have to wait even longer if they want their own government to fund research into a treatment known as the 'liberation treatment.' Despite countless success stories from MS patients who've travelled the world for the procedure, a panel of Canadian scientists says there's just not enough evidence to justify a major clinical trial in Canada.
CTV Calgary: Karen Owen reports
The Canadian Institutes of Health Research says it is not yet ready to fund new studies to test whether the Liberation Treatment helps patients with multiple sclerosis.

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A scan shows the veins in the neck that are involved in the 'Liberation Treatment' for MS. Dr. Sandy McDonald, cardiovascular surgeon, appears on CTV's Canada AM, Wednesday, Sept. 1, 2001. A scan displayed by Italian Dr. Paolo Zamboni shows a partially blocked vein in an MS patient.

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A scan shows the veins in the neck that are involved in the 'Liberation Treatment' for MS.

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Date: Wed. Sep. 1 2010 10:19 PM ET

Despite pressure from patients to fund studies into a controversial theory on multiple sclerosis, the federal health minister says there is not enough evidence to move ahead with any more studies.

Health Minister Leona Aglukkaq said Wednesday she accepted recommendations made this week by the Canadian Institutes of Health Research not to fund further studies on the "liberation treatment."

She said the federal government will instead assemble a working group to study data from seven studies of the treatment now underway.

"To ensure that we have the evidence to support this procedure, we need to do the research," Aglukkaq said.

"And once we have that, we will proceed -- if there is enough evidence from the seven research projects already underway around this subject -- we will proceed with pan-Canadian clinical trials. We will support that.

"At this point in time, we do not have the evidence to proceed."

Many MS patients have been urging quick study on the controversial treatment and the CCSVI theory behind it, which contends that blocked neck veins contribute to MS.

The CIHR said on Tuesday that, after reviewing the research so far on CCSVI and the liberation treatment, "there was unanimous agreement from the scientific experts that it is premature to support pan-Canadian clinical trials on the proposed 'liberation procedure'."

Agency President Dr. Alain Beaudet said the team of experts they consulted wasn't convinced that the CCSVI theory was sound, nor that the liberation procedure is safe nor effective.

In response to question from reporters Wednesday, Beaudet explained that the liberation treatment, which involved threading a needle into neck veins to open them, carries risk.

"Balloon angioplasty is relatively safe -- and I think we have to insist on relatively," he said. "Any procedure where you inject a catheter in a vein, where you compress the vein, where you risk damage to the internal sheath of the vein is not without risk."

Aglukkaq said she looked forward to the outcome of studies currently underway, which are expected to take two years to complete.

"These studies will inform decisions about moving forward with any pan-Canadian clinical trials on a treatment to unblock veins. I will immediately establish a scientific expert working group to monitor and keep me informed of progress on these and other studies. More details on this working group will be available in the near future," she said.

But many MS patients and some doctors are angry with that approach. Cardiovascular thoracic surgeon Dr. Sandy McDonald, who has researched the "liberation treatment," says the federal government's decision is a disappointment.

McDonald believes that Canadian researchers would have been best positioned to answer some of the important questions about the procedure and CCSVI.

"We have a world-class health organization, we have world-class facilities, and we should be doing world-class research by people who know how to do it," McDonald told CTV's Canada AM from Barrie, Ont. Wednesday.

He conceded that there hadn't been much research so far on the treatment, but notes that more research is about to be published. He wondered: if the agency didn't think there was enough research, why didn't it want to fund studies of its own?

"What we're saying is that the research that has been done is flawed and is not good enough, and yet we're not prepared to do the research ourselves," he said.

"If the research others are doing isn't good enough, then we need to do the research here."

McDonald says while he cautions patients from going abroad for medical treatment, he understands that patients who can afford to -- and even those who can't -- will go wherever they have to, to try this treatment.

"I personally don't endorse medical tourism," he said. "But the sad part is that the stance the CIHR has taken actually puts people in the position where they're forced to look at medical tourism for a procedure that should be available in Canada, at least on a compassionate basis."

Comments are now closed for this story

LMG
said

There is only so much money. What would you rather be funded: something that has evidence to show that it might work, where funding will lead to developing the cure, or funding to something that doesn't have evidence yet to show it might work and may not lead to a cure? Personally I would rather our tax dollar to fund something we know we can get a result, rather than something that isn't yet shown to help.


So Disappointed
said

I cannot believe that a society that is supposed to help people with MS would turn down federal dollars for important research. I guess the 'unrestricted grants' from the drug companies are worth more or perhaps it is the influence of pharmacetical lobbyists who have been actively involved in the governance of the society. I will no longer be donating to the society and will encourage others to give their donations to more deserving organizations.


Give me the treatment
said

The MS Society's stance seems to be based on the fact that they take too many so called "unrestricted grants" from the drug companies that make the catastrophically priced drugs that treat MS. My MS drugs currently cost me, or shall I say my province, more than $24,000 a year. A simple day surgery procedure could save tax payers millions of dollars and improve the quality of life of not only the people with MS but their families, friends and co-workers as well.


Steve K
said

Do not be surprised at all by this result. The Minister is ignorant, Health Canada and CIHR are bought and paid for flunkies to the Pharma lobby. Seriously, go the medical tourism route. The only way this will see the light of day is if more people do that and show that it works.Do yourselves another favor, starve the MS Society of donations. Let them be exposed as special interest lobby funkies, like Health Canada and CIHR.


Ted
said

Of course the federal government won't fund research, Harper likes to keep folks a little short on the learnin, because those type of folks vote for him.


Jen B
said

They (ms research neurologists)have been barking up the wrong tree and now would rather cut the tree down than admit it. Because of the MS Societies ( should be MS corporation )ignorance and delay tactics in treatment research , Canadians with MS are scrambling out of the country for treatment. We , with MS, don't have 10 -15 years to wait for the lethargy in our system. 100's of Canadians have already had the treatment. Why wouldn't the MS society at least sponsor a registry for gathering information from those of us who have been treated ? Makes you think they don't really want to know !The simple angioplasty gave me back my future.Don't we all deserve that.


Patrick From North Vancouver
said

Mr. Harper, you are being presented with the golden egg every politician yearns for: Doing something positive and boost political popularity at the same time.


Theo in NB
said

The experts' opinion would have been a lot more credible if they hadn't discounted large, statistically significant (500 people) studies in Buffalo but gave credence to small, "rushed-to-publish" studies that didn't even use the right protocols in Germany. That's not science, but does smell a lot like BS. It would be nice to know how these experts undertook their research in the week given them.


mandie
said

Ignorance......i work with M.S clients and i see how there body fails them and there mind isn't effected yet there trapped relying on others to do there everyday care we toilet them we brush there teeth and there young and yet not able to move ....why not try what do they have to lose it's there choice! there gonna die anyways we all are why not let them decide if they want to try it...not only frredom of choice but it is FREEDOM TO THEM !


montreal49
said

Stop wasting taxpsyers money on something thats not proven and may only be helpful to a few


Guy - Lancaster
said

The Feds screw up everything they touch and waste billions of $ in order to buy votes. Why does anyone believe anything they say?


firstMickey
said

As a person who has suffered with MS for 38 years, I guess the government people who do not have MS might have a more relaxed viewpoint than I have on the matter. We need help. Our disease is the most prevalent neurological disease in the country. What gives here? Put yourself in our place for a change.


awesome51
said

anyone with common sense know that an increase of blood to the brain would be benficial. the treatment should be done to any MS patient who wants it. it should be done here in Canada.it would also be a good idea for politicians to go through the same treatment.


Gregoryd
said

I have been reading all the comments insinuating the reason the goverment and medical people do not want to fund this study is because of loss of reveneue for treating the disease. Well after careful consideration I have come to the conclusion that you are probably right. Boy you guys are so smart. (grin) I believe people with a pecuinary interest or perosnal agenda should not be involved in the decision making process. Use common sense and compassion and I beleive we would be funding this research. I am a conservative but do not agree with this decision and I have to wonder who the hell is advising the PM on this stuff. We look like hard hearted morons on this issue. We waste a billion dollars on security at the G-20 that was a joke then will not spend a few dollars on research that could help some of our citizens in need. Boy thats a caring governmetn.


Will
said

Albertaboy: For the record, my daughter is 17 and HAS MS. We manage her condition through legitimate medicine and she's participating in a medical trial as well. Don't preach your nonsense to me.

ROB
said

The MS Society by default is intentioanally working against people with MS. They have had every opportunity to advocate on our behalf with few if any positive results.

I for one will no longer support MS Canada in any fundraising.

How do we go about creating a grassroots campaign against the MS Society? How do we go about setting up our own organazation to fund the research we want done?


Graeme
said

"Feds not coinvinced MS treatment is safe, effective" --- isn't the at the point of RESEARCH: to convince yourself one way or the other. I'm not convinced either, which is why I'd like to see research.


kg1
said

still confused....the majority of the posters want the govt to fund the research...again I ask...what is the MS Society doing with the thousands upon thousands of dollars they are making through fundraising...i thought that it was supposed to go toward research...am I wrong?


Prakash Sinha
said

I want to know why can't they do tests on 75,000 MS suferers and find out whether the veins are blocked. I am sure sure the cost of this excercide cannot be more than $100/patient or about $7.5MIt is a disgrace that the government didn't even flinch to spend $1B on G8/G20 Summit security but $10M for possibly making 75000 people lives better seems like a mega uphill task.


Patient in Winnipeg
said

There seems to be one misconception shared by many whom aren't familiar with MS or CCSVI, that being there is no one whom is stating that this is a cure for MS. What it does is provides relief for some of the very serious effects and symptoms of the disease, but at the end of the day, you still have MS. Proper blood flow through the human body was meant to be, and can do a person's well being wonders......
AGAIN - no one is saying this is a cure, but it has been providing a bit of an improvement to the quality of life for many.


ross rolko
said

A Crime against Humanity was just committed for the Multiple Scleroses (M.S.) suffers of CanadaWith a simple announcement, the Canadian Government is unwilling to support research for M.S. suffers has immediately resulted in the loss of hope and a severe diminishment of the human spirit.With such losses, the complexity of human emotions will have countless consequences for M.S. suffers, such as; depression, added anxiety, stresses, uncertainty and the list goes on.The logic behind this decision is incomprehensible when this issue deals with human dignity. Is it possible that these men have secured their future security at the cost of M.S. suffers.Extraordinary funds can be readily available by the Government of Canada, for whatever need that arises and their discretion. But to conclude a decision “not†to expend funds to ease human suffering can only be described as a Crime against Humanity.If, I had the ability to establish a new direction for M.S. suffers of Canada, it would be to stop donating to the M.S. Society of Canada and create a new fund to support the CCSVI (chronic cerebrospinal venous insufficiency) research, know as the liberation treatment. As for the current standing Government, the only option for M.S. suffers and their families, is to vote them out of office.May these men be judged by whatever Supreme Being they believe in for their actions? Because, I just witnessed my spouse have her hope extinguished and demoralized with one simple announcement by these CRIMINALS of HUMANITY.


Bryan
said

@Jablonski I agree. The drug companies who are making $20,000+ a year from us (the people with fake illness. "you look fine"), are throwing money at the PC government and neurologists to keep this research down.

At the same time it is not a cure, and we don't know how long the procedure will last. It is an exciting discovery, but I would like more research before I have surgery of any kind.


dave
said

my sisterinlaw has MS, went to India for this procedure.She could feel her feet with in 10 min of he has had no lapses. She has improved 80%of what she was.time to fund this!!


Tonie Turner
said

Boy...how money governs the government. The pharmaceutical companies are winning the battle...here take a drug that it will cost you $20 to $30 thousand dollars a year. If you cannot afford it the taxpayers will help you as the Government aids the pocket of the pharmaceutical companies. MS modulation drugs will help you. That is "lie" for MS individuals. Thank goodness I fought with all doctors. I followed the alternative way (acupuncture, meditation, chiropractor, vitamins and herbs, exercise, Tai Chi, changing diet). In the eleven years since I have been diagnosed I am still walking. However, numbness in my hands and impaired vision (optic neuritis) still lingers on with mudness (difficulty at times in clear thinking and speaking).I will spend and give my hard earned money to the Americans. The Canadian government constantly raises my taxes to take my money. Unfortunately, it will be spending my Canadian dollars on USA land. I need to get the CCVSI operation before more deterioration to my body. I cannot and will not wait for my government who are “not" infected with this illness.Time is an essence for MS patients especially as we get older.


Disgusted
said

To Harper and his crony government: Please be advised that you don't stand a hope in hell to ever rule this country with a majority. Canadians are very wise to your agenda and that is to help anyone that is not Canadian. You should be ashamed of not trying to help MS sufferers.


Furious in North Bay
said

to these feds (and CTV BLEEP as required) you can kiss my ass. Tell that to my sister who is quickly losing her battle with MS, and now we're trying to figure out where we can take her for this treatment, becasue cant get it in Canada. CANADA should be ashamed of themselves, and I will not donte a single pennty to any more MS telthons, walks etc.. this is a mockerie


JayinStoon
said

While I am not one who usually jumps to "conspiracy theories," it seems VERY interesting to me that our government will not even fund research on the liberation treatment. We could be leaders in the research to endorse or discredit the liberation treatment, but rather we plan to sit on our laurels and wait a minimum of two years before any further research is completed. People with this devastating disease have no option but to rely on the EXPENSIVE drugs we give them. Do the pharmaceutical companies have anything to do with this? How much more money will the pharmaceutical companies earn by forcing MS patients to wait two more years on drugs rather than the liberation treatment? I think it's odd that only now are we getting warnings about medical tourism, rather than building the capacity to answer difficult questions by ourselves. Wake up, Canada. It's time to spend a bit of money on research!


Brian
said

18 billion for 65 F35 Fighter Planes
or 276.9 million each
Drop one plane
if MS procedure can be done for $30K
9230 people could have it done
A cheap test


malevris
said

My mother had to go to Germany to have this done because many people are not advantaged with the luxury of time. It is not a cure but a miracle none the less in that it has alleviated a substantial amount of her pain and revealed many of her symptoms. It saddens me that pharmaceutical are extended such power as to block this FORTY-FIVE minute procedure from being widely accepted throughout our country. My mother was awake, not even an incision was made. How arrogant of people to suggest there is a placebo effect occurring in patients. Ethically, it should be decided by patients whether they would like to accept any associated risks; none greater than an angioplasty (which is a procedure performed thousands of times a day).Shame on our governments and the corporate control which has hindered scientific progress and availability of treatments. SHAME.


Jay
said

Headline should read : "Feds not convinced they have not been offered a good enough pay-off to deem it safe" Thats the reality of all this,they just havent figured out a way to capitalize on it yet.


Adam
said

The treatment is safer than MS.At least open a window for a finite amount of time and then see if the patients benefit but don't quash the hope that has been given with evidence that the treatment works.


Come On People
said

Finally some common sense from Harper and his Gov't. Hallelujah.


Richard in Ontario
said

Health Care is a Provincial responsibility. Is Ontario or Alberta doing any funding towards this procedure?


Anonymous Montreal111
said

Proceeding cautiously makes sense. It's not prudent to have money thrown away on "fast fix" cures unless there is evidence to support this.

As a researcher myself in health care, we spend 10-12 hour work days working to help solve medical problems. Meaning, we are motivated to help and really want cures. It's not just our job, we dedicate our lives to these causes. If a treatment is promising, researchers will certainly want to move forward with testing it.

I find it sad how many people fall for quick fixes and waste their time and money, and put themselves at risk. This has happened a lot in the field of autism. Chelation therapy has killed children, but many families insist it works, despite a complete lack of evidence and theories about autism that make no sense at all. It's not clear if this therapy for MS works, but families should remain sceptical. Scientific reviews are there to protect the public from being misled and our tax dollars from being misused.

Certain practitioners see the need for a cure, and they see they can make money off of desperate families. Nevermind ethics. It is all very sad.

I hope there is a cure for MS, and I have had friends who have suffered from this too. However, I support the scientific review process. If this treatment is deemed worthy to study, the research should go forward. Until then, money should be spent on more promising treatments and studies.


AnnG
said

Alain Beaudet should educate himself and not leave all the details to the MS society who is influenced by the neurologists. WHY WAS DR. MCDONALD OR ANY OF THE OTHER DOCTORS THAT HAVE FIRST-HAND KNOWLEDGE OF THIS PROCEDURE AND CCSVI NOT INVITED TO PARTICIPATE ON THE PANEL with the other experts??Alain Beaudet look at all the positive research that is being conducted and published on treatment for CCSVI around the world -- Dr. Simka (Poland) Dr. Al Omari (Jordan) Dr. Beelen (Belgium) and Dr. Sinan (Kuwait) All of these vascular doctors are documenting their positive results and the correlation of CCSVI to MS.Alain Beaudet get off your rear end and do some investigation work yourself on this treatment, work for your paycheque!!!


Arun
said

Research elsewhere has been unable to replicate Zamboni's results. Unfortunately, I don't have the space to be more specific.

I'm a fan of research, but I'm not a fan of researching claims like cutting off your arm will cure cancer. The situation with Zamboni's CVI idea is disconcertingly analogous to this.

The real tragedy here is all those MS patients who have been tricked into false hope by a man looking for money and fame; especially tragic are the patients I see who had the treatment, and still have MS.


Abandoned in Canada - again
said

We could talk about how much aid gets donated outside of Canada, while Canadians in need suffer. We could talk about contributing to CPP for 23 years and being disallowed disability pension because of not working 4 of the last 6 years. We could talk about massive hospital expansions and then telling patients that there's no money to test you for West Nile Virus. How about paying jailed prisoners a pension? All certainly examples of taxpayer money well managed. The reality of the CCSVI situation is that there are already gloom and doom forecasts for the stability of the medical system as we near its taxing by the baby boomers. Why would/should our healthcare structure absorb the costs of providing a relatively simple angioplasty procedure to those with MS, when it knows for a fact that thousands of people have either already gone outside of Canada (or will be), and have found (or borrowed) the $10 - $20 thousand themselves to have the procedure done? In terms of it being dangerous, almost every operation of any sort requires a patient's consent/liability disclaimer that basically advises that one could die as a result of any type of complication. In our personal experience with the disease, and for anyone whom doesn't realize the seriousness of MS, many MS patients would rather die than be subjected to their 24/7 tremendous pain and suffering, not to mention that there is or has been no hope, at least up to the discovery of the CCSVI theory. I'm certainly not a doctor, but common sense seems to be that whether you have MS or not, this condition of improper blood flow through the brain and spine can't be healthy for anyone.



Albertaboy111
said

I guess these medical "experts" along with the Conservative party of Canada do not think that blood flowing out of the head through the jugular veins is necessary for the health of a person. Where did they go to school? I plan on standing in front of Gene Zwozdeski's office with a sign stating as much.


Albertaboy111
said

More like "Feds not convinces MS treatment is safe (for the long term profits of pharmaceutical companies.) or (cost) effective (when donations from Pharmaceutical companies are worked into the equation, as if this worked, we would save billions a year on unnecessary drugs)"


John From Southern Shore, NL
said

I can't help but agree with Dr. McDonald in that Canada should be willing to fund the research if this board is unhappy with what research has been done. There is too much anecdotal evidence that this proceedure can be sucessful in at least some types of MS. This makes me think that the big research organizations are unable to bear the fact that somebody from a foreign country could find such a simple cure after they spent hundreds of millions of $$$ trying to find a cure.

If somebody has bee diagnosed with MS and then has a heart disease that requires the use of either one of these proceedures, does that mean the Dr. will not do the operation because of a fear of also curing the MS?



Geoffrey
said

I don't have MS, so I can only speak as a tax-paying Canadian.
This proposed technique may not work or may be useful in only some cases. That sounds an awful lot like a lot of drugs that are marketed to us. Drug companies benefit tremendously through tax deferrals/exemptions/grants. The MS society benefits from free-will donations from people like me.
Two to three million dollars can't seriously be a barrier to a Canada-based research study.
To me, it looks like a small bet, granted maybe on a long-shot. Maybe DND could transfer the cost of a few paint-jobs for fighter planes over to Health Canada or whoever and just give it a try...?



DiannaGrenier
said

I have MS and cannot understand why I can not have the surgery in Canada., I will have to try and raise the money to go out of Canada as I am on disability and live alone. It is my life or lack of and I should have the choice


Doug # BC
said

Yep.There's so much "spare" money in the government treasury that we should just sprinkle it everywhere.I'm sure we'd all be happy to see even higher taxes and fewer services to fund this research. Research into MS will still be done.Reasearch into this procedure will be done by someone else.Why would every nation on the planet to the same studies? If some study this procedure, others can study other procedures.The more procedures we study,the greater the possibility that someone wil find one that works.From my perspective,it is not likely that this will be the one that works.If government pours millions of tax dollars into this research,and it proves to be a failure,the same people complaining now will be complaining that the "government" wasted their tax dollars of quackery. If you believe this procedure must be funded and researched in Canada,put your maoney where your mouth is.DONATE to the cause.For my part,I think the same amount of funding can save more lives if it is spent on procedures that have been proven to work,and that's how I want my health care tax dollars spent. Don't confuse compassion for sufferers of MS with hope.Do not throw money at every single idea that comes along.We have waiting lists of people waiting for cancer treatments,for heart and lung treatments,and even for the luxury of clean drinking water.We KNOW that the dollars we spend there will save lives.Since there are a finite number of dollars available,the right thing to do is spend them first,on treaments we KNOW will work,and save equally valuable lives. Research can go ahead with funding from private sources.If you believe strongly in this, fund it with privaste money.DONATE.


Chad
said

Too bad this government is not a little more progressive and a little less conservative. Another huge opportunity for medical advancement blown!


Kevin Hooff
said

Blood not flowing properly through an organ? FIX IT!
That is standard protocol. This is a case of discrimination
and criminal negligence.


Rene
said

If some of the dicision makers had family members with MS or had it themselves they might think different. However they have the big buck salaries to go to other countries and have the treatment while regular folks sure can't afford to do that. It's time Canada stopped being such a wait and see follower and got with the program since it has a very large number of MS patients compared to other counties.


ltfrombc
said

It is easy for those who do not suffer or do not have family members who suffer from MS to sit back and take a wait and see attitude. This decision is bull as far as I am concerned. To me it all comes down to money - find a cure and the cushy research jobs go down the tube and the researchers will need to find other jobs. This disease (and many others) provide countless people with jobs through research. We raise millions of dollars to keep them working and there are very few cures. Now we have a potential cure and they don't want to study it. Shameful. And to think the MS society supports this decision - who is the MS society working on behalf of? Obviously not those with MS. I will not support an organization that does not support they people it exists to support. As we speak my cousin is leaving Canada within the next 5 days to seek this treatment....he can ill-afford to "wait" for two years to see what other studies find and then another year or two for Canada to do a study. He is only 50 and already confined to a wheelchair. He does not have the luxury of waiting. Easy for someone who does not have MS to tell those who do to wait 4-5 years for a possible treatment. Maybe these people who made this decision should walk a few miles in the shoes of someone who has MS. Maybe their distorted thinking will change. It is shameful that a country such as ours will sit back and do nothing. Disgraceful.


Jan whet
said

People voted for this government so you get what you asked for no ms investigation but fake lakes


Brent
said

There is much published anecdotal evidence of relief from Dr.Paolo's Zamboni treatment (and others) when the restricted vein in the neck returning de-oxygenated blood from the brain to the heart is unblocked. Therefore the hypothesis that this restriction causes MS symptoms merits further study with proper scientific method for scientific confirmation. Get on with it! This whole incident reminds me of the skepticism which greeted Dr.Banting's discovery of Insulin.


Kevin Hooff
said

Blood not flowing properly through an organ? FIX IT!
That is standard protocol. This is a case of discrimination
and criminal negligence. fixccsvi.com


Prakash Sinha
said

As they "You are either part of the solution or part of the problem". It seems that these so called "experts" have become part of the problem. We should publish the identities of these so called experts and nay-sayers in BIG BIG letters in all the national media and shame them to death.


John
said

I don't think one MS patient expects this to be a "cure" for MS- but rather an procedure to enhance the quality of the patient. It is possible most MS people will still need medical support after this procedure.How-ever if it improves the quality of live DO IT !!
It will also be my last dime to ANY research group if they deny this to MS patients, It will also be a factor in my vote this year....


Martin
said

I am also surprised that this proceedure is being frowned upon. People I know who are currently in Costa Rica and have had this proceedure done there are receiving immediate indications of improvement. That is amazing considering that we who are healthy seem to be able to control the illness in others! What a mistake, when we have a much more complicated proceedure in the cardiovascular field of inserting stints to improve their chances of survival and being able to carry on a normal life.Maybe our polititians need to experience this desease in their own family to appreciate the urgency of this research.Perhaps the pharmacuedical companies are partly to blame, because they can continue to pump in expensive drugs that don't work!


Sara
said

We the people are in fact the problem here - we have given these Medical associations way too much power over the last 100 years. They pull at your heart strings and get more and more from you. You look to them as if they are gods. Stop the fundraising on all levels for all causes. You are not helping but fuelling the problem. All you are doing is increasing already over inflated salaries and adding more people to that payroll. They are not doing anything to cure any of these deseases and people are still dying by the hundreds. Save your money to support Dr's that are really out there trying to find the answers and put the rest out on the street where they belong instead of bankrupting this country like they are doing now. When Doctors can cure deasease rather then just manage it then there salaries might be justified. Billions of dollars in salaries to hand out prescriptions all day can be done by any monkey. Canada need not go bankrupt for that. Stop giving them all the power that you do. Start educating yourselves to the reality of healthcare. They are getting rich off our ignorance. Stop funding them and stop running to them for every little thing. They can cure nothing. You have a body that has an incredible ablity to heal alot that goes wrong with it if you just give it the time it needs to do so. For those illnesses that don't look after themselves, give your money to and support the doctors who are in this field for the right reasons. They care and want to help and make a difference. Unlike most of them today that are in it solely for the money and overinflated ego's that go along with that.


Earthwatcher
said

Gutless decision by the Feds...I really thought they were going to step up and for a change, be a LEADER in something significant. Instead, they choose the spineless approach, the wait and see, the "lets let somebody else take this thing by the scruff of the neck and DO something".Bad move Conservatives, this could have actually boosted your sagging approval rating. Who does your planning anyway?? Mickey Mouse?


Al
said

hmmmmm.... isn't healthcare a fully provincial responsibility? Every time the feds go to allocate money for health care, the provinces balk and sream if the feds tie conditions to the funding (even conditions like: must be used for Health Care).


Albertaboy111
said

Will, you do not have a child with MS. If you did, you would have already done more than enough research to know it is more than a quack-cure. If you really are uncaring for your child enough to not have looked into this, do it. It may very well give her her life back, as it did for my father.


malevris
said

My mother had to go to Germany to have this done because many people are not advantaged with the luxury of time.

It is not a cure but a miracle none the less in that it has alleviated a substantial amount of her pain and revealed many of her symptoms.

It saddens me that pharmaceutical are extended such power as to block this FORTY-FIVE minute procedure from being widely accepted throughout our country. My mother was awake, not even an incision was made.

How arrogant of people to suggest there is a placebo effect occurring in patients. Ethically, it should be decided by patients whether they would like to accept any associated risks; none greater than an angioplasty (which is a procedure performed thousands of times a day).

Shame on our governments and the corporate control which has hindered scientific progress and availability of treatments.

SHAME.


Mars
said

If the gov and other organizations refuse to fund this procedure, at least APPROVE it so people can pay for it themselves! The continuous denial is just fuel in the fire. If it is believed people will forget about this treatment, every day living with symptoms is a reminder that a potential treatment is being withheld.


kg1
said

my one concern is shy is not the MS Society funding this...isnt this classified as testing/treatment, isnt that what all these people are fundraising for. or is it as simple as the fact that the drug companies will not be getting their cut if this treatment works and from what i understand it is working (so far) and the people are actually getting a quality of life back...i am confused..quality of life vs thickness of wallet..hmm


Stacey
said

This is ridiculous!


mpb
said

In my experience as a heath care professional we worked towards improving quality of life and preventing problems by improving health. To deny funding to this research goes against the health care model we strive to achieve. Masking medical problems with expensive drugs that depletes the savings of individuals or costs millions to provincial governments is not the answer. Its like giving a pain pill instead of finding out what is causing the pain. Who are these Neanderthals that think they can play God.Dr McDonald, I applaud your support, Brad Wall please continue to support research into this treatment. My Dad's cousin spent half his life in a nursing home with MS, my uncle died of a massive hemorrhage due to drugs he was taking to reduce the effects of MS. My daughter was diagnosed 3 years ago and I pray that in this new millennium her life will be better as medical science advances.


James T
said

Wooow... No wonder the Sith are so strong in Canada. The weak-minds filling this forum show the fertility of the ground for the Dark Side here. Darth Sweater Vest has played ALL of you, and you accept it with glee. Why do you think that Brad Wall of Saskatchewan - a CONSERVATIVE (aka Sith Apprentice) - was so quick to announce funding of the trials in the easiest province to draw? We have more MS patients than anywhere else, and we have the money, so it makes sense to do it here, but there is something underneath it all. Harper can appease the fiscal conservatives while getting the information he needs from one of his minions. Clean, efficient, and for those whose minds haven't turned to jello - obvious.


Henry Vandervoort
said

I suffer from secondary progressive MS. There is no treatment available to me. If I want a sex change, the government would probably pay for the operation, but, they will not be part of something that can give someone HOPE. There is something wrong with this picture.


MP
said

And yet modern medicine wasted no time developping an erectile dysfunction pill.

Governments and Drug Companies are so dependant on each other one can't exist without the other.


Albertaboy111
said

Remember in the next election folks, every party other than the Conservatives have supported giving this procedure to Canadians, and doing a clinical trial that way, as the thousands of procedures performed around the world are enough proof it is safe. I saw my dad stand up the other day (using a hand railing). I have not seen that in 5 years. Thank you Dr. Zamboni, and thank you to the doctors in Mexico that got my dad in so quickly. Conservatives, and everyone else against this procedure, there is a special place in the afterlife for people like you, who put profit above peoples lives. I have seen a miracle, and will keep fighting until everyone else can too.


RCR
said

Anyone upset with the fact that the government won't jump right in and fund this latest theory, might want to do some research on their own regarding this terrible disease. In the 1950's Dr. HD Jonez set up a clinic in Tacoma Washington and there were people who got out of bed and walked without help after some of his treatments. One theory was that the body wasn't producing enough histamine. He also suggested it was caused by a virus. So many theories have been tried over the years and this procedure now happens to be in that long list. I hope it is the answer for sure, but as with everything, it is a wait and see thing and best left to the experts who don't operate emotionally.


Albertaboy111
said

I have seen what this procesure can do with my own eyes. I will ensure this government remembers exactly how many deaths they are responsible for with this decision. Thank god the procedure is being done elsewhere, and every place that is doing it has tremendously overwhelming evidence supporting this procedure (90% and above have the blockage, and all see improvements). All this has done is ensure Canadians are some of the last on the planet who will receive this procedure. For Shame!!!! I will make sure they remember what their ignorance has done to their own citizens.


montreal kim
said

Don't wait for them, go get it done where they are doing it! PROVE THEM WRONG! This is YOUR life!


kim
said

So wrong...............If one of them had it, you know it would get approved. Limit the trial to 500 MS patients, see what happens! This might be the answer, what are you afraid of?


James Hogan
said

I wonder whether they are afreaid that the monies would dry up if a cure was found and they would be looking for a new job


Jackie Barrett
said

I wonder if there is a Facebook group dedicated to fighting to pressure Canada to fund CCSVI treatments for MS sufferers in Canada?In the meantime, all MS sufferers should send a message e-mail to Canada's incompetent Health Minister who listens to experts but not the people who elected her, Leona Aglukkaq, to get her to change her mind.If any MS sufferer wants to e-mail Ms. Aglukkaq, her e-mail address is Aglukkaq.L@parl.gc.caIn the meantime, if provinces like Newfoundland and Saskatchewan want to fund CCSVI clinical trial treatments, they should be free to do so, with or without, Aglukkaq's blessing.That way, if these trials are successful, that will prove to Harper and Aglukkaq that they are wrong.


ASIFO
said

Another decision by our government that does not make sense, but instead screams of interference by the pharmaceutical companies. What are the statistics on how much is spent on MS drugs and care in Canada.

It is a harsh, uncaring government that would trample on people's hope and base their decision to NOT fund research on something that sounds so promising, on a lack of research.

Who were these "so called" experts who made the decision for CIHR?


maxine David
said

"They'll give us a needle or a pill perscriptions that they love to fill" rather than treat us for a vascular problem, which they are completely ignoring!


Prof Dis Gusted
said

I'm not surprised that the Harper gov't will not fund the necessary research. This is the Conservative philosophy and way of doing business. If you are sick fend for yourself. It has nothing to do with the merit (or not) of the research itself. Now, if it could be linked to a 'law and order' agenda - well that's a different story...


Carl
said

Opponents of the government are always crying for the government to listen to expert scientific and bureaucratic opinion. Now that the government is doing just that, these same groups are arguing that the government should ignore expert scientific and bureaucratic opinion. You can't have your cake and eat it too.


Lance Penny
said

This is deceit, corruption and exploitation at its ugliest. There is an abundance of evidence and documented success with this procedure but of course it threatens the pharmaceutical profits and established fund raisers bottom line. This decision is absolutely despicable and immoral and exposes the “good old boys” control for profit methods.


Mark
said

As a scientist in a different field I can confirm that ANYTHING that falls outside of the mainstream will be met with skepticism and a particularly cruel form of scorn by "the establishment". The "establishment" is the well-funded laboratories and legacy of publications that may be threatened by a novel approach that defies "the establishment". This is not a 'grassy knoll conspiracy' sort of mindset but is well recognized by many of us in the biomedical research establishment.The multitude of individual cases where symptoms are markedly improved by this surgical procedure comprise a case series that should be investigated. The resistance to follow through with such investigation (headed by the neurology bunch) is because it threatens orthodoxy, funding and reputations....patients likely figure very little in the equation.


KD in Alberta
said

Dear ignorant people who fire off at the hip with conspiracy and political nonsense. Health Canada and the Canadian Institue for Health research are two very different organizations. CIHR provides grants for academic and clinical research. They have tons of applicants every year, myself included, for a wide scope of diferent health research.This has absolutely nothing to do with the primeminister, MS conspiracy theories, or big pharm. This has to do with the feasability of the project, end of story!


Jim Bragg
said

I am becoming more frustrated all the time. I was originally told by a neurologist that I was just getting old, and I didn't have MS. Later I was told I have Primary Progressive MS, however there was no treatment or drugs available. So I assume I will just exist until my time is up. Thank you Canada for removing any hope at all.


Will
said

Having a child with MS, I am pleased to see them proceed cautiously. We don't need quack-cures with no basis in science. We DO need real science on this. And for the dope-heads, POT DOES NOT CURE ANYTHING.


Sue
said

This is absolutely ridiculous. If they're worried about its safety and efficacy, that's all the MORE reason to start trials here. Another case of Canada being this nanny state that decides what's best for everyone. For all those Canadians suffering with this curse of a disease, get the help where you can, because obviously your own country's not interested in assisting.


MARK STEWART
said

I'm so angry at our own Government for doing this PROUD TO BE CANADIAN? YEAH RIGHT it isn;t funny. Who are they doing studies on? They won't allow it apparently. I'm proof that this works. I'm the biggest skeptic there is. I just returned from Merida Mexico and I feel no pain, my hands work, and Im well on my way to walking again. ARE YOU KIDDING ME CANADA? OF COURSE THIS WORKS. COME VISIT ME FOR PROOF.


BrentK
said

I was diagnosed in 1991. Since then, I have been told repeatedly that I'm too ill for my former profession and uninsurable for that profession (dangerous goods consulting). I am too healthy for CPP disability, fit for suitable employment by my long term disability carrier (Mikey Dees or some such laudable profession) and too boke to afford the drug regimens that are available (with 2 insurance policies that paid 80% per, leaving me with $580/month to pick up) it is fairly obvious to me that there are some serious vested interests pressuring the outcome of this issue. They don't care that a simple procedure could relieve my symptoms. They are worried that the procedure would relieve them of my finances. How much of that is tied to the government's decision? I have my thoughts, but I will let you make your own decision on that.


frustratedMSer
said

There's going to be another rally on Parliament Hill on Sept. 20'th at 1:00. Come out and support CCSVI treatment here in Canada.


T.D.
said

It always end with the buck. The MS group don't want a cure because they don't have the disease and their big bonuses and jobs might be in doubt. Plus drugs companies want to sell drugs not cures. I will not give another dime to MS .


Tom
said

The federal government doesn't believe in scientific facts, but they throw away over a billion on a fake lake super do nothing meeting, but don't help Canadians. They send millions to Haiti & Pakistan, but nothing for Canadians. Harper wants to spend millions on prisons for unreported crime, but nothing for health research. Harper's recent photo opt in the Arctic is said to have cost around a million, but nothing for health research. Mr Harper you make me sick.


Wendy
said

More tears, more frustration, more anger. Why? These people will end up with MSers' in their face with guns. How can they do this?


Richard in Ontario
said

Unless you've been associated with MS, you might just be jumping to a whole lot of conclusions. Having experienced being with MS sufferers, we know how many times over the years that cures or relief has been offered. Watching a Mother in Law and a wife die from this terrible disease and now watching as my daughter starts to struggle with it, I'm as hopeful as anyone that this procedure might be the answer. My mother in law went to Tacoma Washington in the 50's in a wheel chair and came back walking with canes but was later ravaged with the disease. We have heard many times that someone has been cured only to discover that they have gone into remission. My wife went ten years with few visible signs after her initial attack.. Further, one specialist told us and he was the first doctor that knew more about the disease than we did, that there are in fact at least 29 different strains of MS. Would I like to see research into this new procedure? Of course, but I would also hope it doesn't become some kind of poitical football thrown around by people that know little about this affliction.


Jack R
said

Easiest way I can think of to get this funded is to renounce your citizenship, get on a boat sail out, and then sail back into Canadian waters looking for refugee status. Then the government will give you the millions you're looking for. Tax payer dollars aren't available to Canadians unless you can show it's to be wasted on something.


Dean in Abby
said

I think if someone were to dig into this a bit deeper, we would find that some large amounts of cash has been transferred somewhere. How else can you explain this decision to not go forward with this treatment? Obviously, the drug lobby and associated companies stand to lose a ton of money for their drugs and research grants. I can't believe we call these people "experts". There is no such thing as an expert. Remember, back in the day, the experts all said the earth was flat too! These people and the groups they represent should all be ashamed of themselves. This is a group that looks like a joke.


Daveyboy
said

Well if you find a cure for MS. I guess there would be no need for all those people sitting on the (no doubt) very lucrative boards. It's all about sustained funding. It's usally always about money and job security. that's why things move so slow.


wearestupid
said

Dr. McDonald says to do it --do it--why do people have to go out of canada to get treatment --drug companys make to much money on drugs why would they want a cure for MS--just like cancer it can be treated but the drug companies would go broke--drug companies are worst than drug cartels.
smarten up canada email your MLA and raise hell we need to cure these poor sick people


Diane from Toronto
said

This is not surprising - A big thank you should go to Dr. McDonald for his opinion and never ending fight to help MS patients and to make the powers that be see the light about this relatively simple procedure with minimal risk. Like many have said above, the pharmaceutical companies have the neurologists in a stronghold. The Health Minister better see through this ludicrous facade


ROB
said

To the experts,



Would someone explain to me why Canada must reinvent the wheel on medical advances.



The MS societies of Canada and the USA and CIHR herald "Over $2.4 Million Committed to Support Seven Operating Grants to Explore the Relationship of CCSVI to Multiple Sclerosis" [from the MSSociety.ca website] as their response to the demand for action by MS sufferers and the public. In fact these studies go off on their own tangent to develop new methods of imaging and to evaluate comparisons between control groups and other MS patients. All very admirable, but they are not attempting to corroborate the findings of Dr. Zamboni. In the next breath these same organization criticize the procedure and the work of Dr. Zamboni as unproven and lacking in scientific merit. CIHR President, Dr. Alain Beaudet said "There is an overwhelming lack of scientific evidence on the safety and efficacy of the procedure, or even that there is any link between blocked veins and MS." [from the cihr-irsc.gc.ca website]. Statements such as this do not inspire confidence in the public that an honest effort is being made to support Dr. Zamboni's hypothesis.



Dr. Zamboni has a hypothesis. He has conducted his research and a very limited trial. He has some very specific techniques for imaging and performing the procedure. Get away from the moniker of "The Liberation Procedure". The name is sensationalistic and implies a radical prodcedure. The procedure is in fact a straight forward venoplasty. Vascular patients have hundreds of these procedures performed every week in Canada alone !!! Their safety is not an issue. If it is, then suspend all angioplasty and venoplasty procedures immediately. From health.lifestyle.yahoo.ca: "Angioplasty is safer than bypass surgery. Less than 1% of people die from complications of angioplasty." To put this in an MS context, I am currently taking Tysabri, also known as natalizumab. People taking natalizumab have an increased risk of developing Progressive Multifocal Leukoencephalopathy (PML). PML is a potentially fatal viral brain infection. The following excerpts are from Wikipedia:



"A recent preliminary study suggests that patients on this drug for more than 12 months are at elevated risk for PML "



"The risk of developing PML was later estimated to be 1 in 1,000 (0.1%) over 18 months though the longer term risks of PML are unknown."



I am told by my neurologist that my risk is now at 1 in 500 having been on the medication for more than 2 years. The reason I stay on the drug is that it provides me with the best known results for slowing (not curing) the disease. The relative risk associated with a venoplasty is directly comparable.



The efficacy of the venoplasty with regard to MS is the real issue. I admit that there can be no definitive conclusion at this point in time. Dr. Zamboni is on record as saying that more clinical trials are needed to support his hypothesis. It is entirely possible that further research and trials will refute his hypothesis.



The seven heralded research studies all focus on imaging. Trying to find the best way to perform the imaging will not be immediately productive. It will do little if anything to prove the efficacy of the procedure. If the North Americans ( Canada and the USA ) want to corroborate or discredit Dr. Zamboni's procedure then they should duplicate his exact methodology, trying to duplicate his results.



A search of the term "scientific method" which I vaguely remember from high school science produced the following excerpt from Wikipedia:



"Scientific researchers propose hypotheses as explanations of phenomena, and design experimental studies to test these hypotheses. These steps must be repeatable in order to dependably predict any future results.”

Produce a study which exactly replicates Dr. Zamboni's steps. Prove or disprove his hypothesis and results by following the Scientific Method we were all taught in high school. Staff the research study with researchers who WANT to prove Dr. Zamboni's hypothesis to be correct, but are open minded enough to recognize that the hypothesis may be incorrect.



As an MS sufferer, I don't have the luxury of time. My disease marches on regardless of the research that is undertaken. What I need, what all MS sufferers need, are results. Tysabri gives me the hope to carry on and a little more time to wait. Dr Zamboni’s hypothesis gives all MS sufferers the hope of some if not total relief.



Don't reinvent the wheel. Work with the wheel you've got, see whether it works. IF IT DOES, then start to analyse, investigate and improve on the ORIGINAL design. Investigate whether the hypothesis works. Use Dr. Zamboni’s methods. Improve on imaging and procedural techniques if the original hypothesis is supported. Don’t waste your time. Don’t waste our time.






D Blais
said

The answer in a few words is ! Money , and the Pharmaceutical profit !
Medical research Is going nowhere in as long as we keep the Drugs maker i charge


Roli
said

The refusal to fund the research is simply to save money. However, we do find money to cover medical expenses of the 490 boat people that just arrived in Canada.

Someone should get his head examined


Sean
said

@Bob van Leeuwen: [citation needed]
---

Full Disclosure: My mother died from MS related causes over 10 years ago.

As for not funding a study in Canada at this time, it actually seems to be a prudent move. Zamboni's research seems to be "sketchy at best" and there are many other studies in progress trying to replicate his results.

Why should the Canadian system spend the money on yet another attempt to replicate what Zamboni did, when the rest of these studies are going to be finished first? It doesn't make sense to me since when they finish, our study will still be in progress - so we will start off either behind, or we'll be working on a study that is useless.

I applaud the wait-for-further-results approach. If these preliminary attempts at replication of Zamboni's work are successful then I think our money will be better spent funding a next-level study.


Anne
said

This is obscene and Canadians should finally become "un" Canadian and stand up and say enough. According to the CIHR act, they are 'accountable to Parliament through the Minister of Health'. Voters, turf Leona Aglukkaq in the next election, and or any other elected officials who are in support of the CIHR decision not to fund research in to this obvious aid to those suffering from MS. The anecdotal evidence to date is a no brainer that this remedy should be investigated. Time to take a stand Canada.


B. Kelley, Realist In Ontario
said

Think about it. Dead people don't cost the health care system anything. Saving lives means that people live longer and they put more burden on our tax funded health care. The whole system is being run by accountants and actuaries and anyone who thinks that medical considerations are the big priority are daydreaming.


Lynn Smith
said

rs and pocketbook. We need all the help we can get!!!! Lynn


MadDog
said

Isn't it amazing! The Canadian MS Society is spending $700,000 nationwide on CCSVI research...imagine! You can barely buy a house in Toronto for that! And let me think...there's 75,000 Canadians with MS...HMMM!...$700,000 divided by 75,000...that's a whopping $9.33 per Canadian MS sufferer...that'll get you 3 subway tokens in TO or one return trip to the grocery store by taxi in small town Ontario.  Take your pick!  And to think that they're willing to spend that exorbitant amount of money on a procedure that might improve the quality of life for many of those people.  Wow! I'm impressed...NOT!!!  For one thing none of the research they're funding is actually investigating the procedure itself; they're merely replicating the testing that has already been done by Zamboni in Italy, as well as in Buffalo and Hamilton.  Oh, and did I mention that neither Buffalo nor McMaster got any of the money from the MS Society to fund their research?...could it be because they're actually going to research the liberation procedure itself?   What does the term "health care" mean?  Well I guess in Canada it means one thing for most people and something else for people with MS.  Oh...and the organizations which purport to be our advocates...don't confuse them with the people who really care.  They're too busy worrying about upsetting the egos of the people who are doing the "real research"...you know the stuff that's so readily accessible and safe...like stem cell transplants.  After all if you're almost dead or a "hopeless case" you might be able to get a stem cell transplant and it only has a 10% chance of killing you. I'm thinking if the liberation procedure involved expensive drugs we'd be dealing with a whole different kettle of fish.  There's just no profit margin in balloon angioplasty!  It's time the MS Society and the neurological community got their hands out of the pockets of the pharmaceutical companies.


stevo
said

By not funding the research and treatments more Canadians are forced to go abroad for treatment. Perhaps this is the reason why it's not being funded. It saves the government a bundle if Canadians pay out of their own pockets for foreign MS treatment.


William
said

Like cancer, a cure will never be found nor is it wanted by the society's that do research for two basic reasons;Loss of revenue from the countless fundraising endevors and;loss of jobs to all research workers.Enuf siad on this topic


oddforme
said

what is the problem --if they have blockage treat them --it has been proven it works. is it the doctors or the government who do not want to do it. It cannot be a money problem we seem to have a lot of that to give to other countries


Colleen from Manitoba
said

Follow the money and there is no doubt that there are powerful vested interests influencing these decisions. There are approx. 75,000 people suffering with MS in Canada and annual costs for drugs range between $20,000 and $24,000 for each person. That's a chunk of change! Do the math! Who stands to lose, and who stands to gain if liberation therapy is successful?


Don
said

My daughter suffers from M.S. I will not be voting for anyone who does not agree that studies need to be done in this country.


Rudy
said

This refusal of the medical system in Canada to research this MS treatment is heart breaking to MS patients in this country and shows that in Canada when it comes to health care it is all about money, ignorance or arrrogance.


Disgusted
said

One has to wonder how much influence the pharmaceutical industry had in this decision.Small , relatively inexpensive surgical procedure or a lifetime of expensive prescription medications.

There simply isn't a valid reason for NOT conducting clinical trials especially given the degree of improvements reported by those who get the procedure done.



Jablonski
said

Why not fund research? Pretty simple, there is no money in that. When pharmaceuticals lose their drug money the decision making medical profession loses theirs as well. Follow the money to find all the answers.


Janis Maharaj
said

It seems that the Conservatives are allowing Canada to fall farther and farther behind in all types of areas, especially those of scientific, medical and environmental research. We are a country that used to pride itself in achievements in medicine and technology. Now, we are just following along behind the United States.

The Health Canada refusal to fund research on this new treatment for MS is even more unconsionable than usual. It is an easy procedure, not without risks, but something that could help so many. People with MS sit helplessly by in their wheelchairs, dreaming of the day when they might experience some freedom from this terrible disease.

Health Canada officials should hang their heads in shame. This should become an issue in the House of Commons, and certainly a campaign issue for the next election campaign.

I am becoming more and more ashamed of the things this government is doing - or rather, NOT doing! Those of you with this disease, rest assured - your day will come. You and your families can speak with your votes.


Lad
said

INFURIATING!!!


Tim from Houston
said

Dr. McDonald, please don't wonder why the feds won't fund your research. It's simple, really. My wife suffers from it, and we've heard more than our share of excuses. The best one we ever heard was, "It's not a real disease. It's all just a bunch of symptoms. In fact, it may not be a disease at all. Rather, just a complex head condition." Yup, that one came from a doctor. Sometimes I wish that all those doubters would contract it themselves.


Bob van Leeuwen
said

I've been told in a meeting with another government department, that myself and a couple of PhDs would not be listend to, "Because you don't belong to the club". It feels to me that the MS trials are being subjected to a similar style of review.


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