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Linda Finkbeiner believes early diagnosis allowed her husband Jim to find a specialist, begin taking medication and tell his family about the disease. Playing video games is just one way Jim Finkbeiner keeps his Alzheimer's in check. Shirley Rexrode, left, assists her father, Hsien-Wen Li, who is an Alzheimer's patient, with his daily walk, in San Francisco, in this photo taken Thursday, Sept, 1, 2011. (AP / Ben Margot) Naguib Gouda, the CEO of the Alzheimer Society of Canada and Elizabeth Allen, who has been diagnosed with Alzheimer's disease, appears on Canada AM, Wednesday, Jan. 4, 2012. Shou-Mei Li holds the hand of her husband Hsien-Wen Li, who is an Alzheimer's patient, at their home in San Francisco, in this photo taken, Thursday, Sept. 1, 2011. Dementia is poised to become a defining disease of a rapidly aging population. (AP / Ben Margot) Seniors walking

Dementia symptoms often dismissed, survey says

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CTV News: Canadians dismissing dementia
Canadians are still dismissing symptoms of dementia as 'just old age' based on survey results released by the Alzheimer Society. CTV's Medical Specialist Avis Favaro reports on one couple who wants their experience to serve as a positive lesson for others.
CTV Winnipeg: Seniors ignoring signs of dementia
A recent online survey found many people with symptoms of Alzheimer's wait too long to see a doctor. Josh Crabb reports.
CTV News Channel: Details of dementia survey
CTV medical specialist Avis Favaro discusses the survey which dealt with 1,000 caregivers of people with various forms of dementia. They found more than half of the people delayed going to the doctor and many thought the symptoms would go away.
Canada AM: Delaying diagnosis in seniors
The CEO of the Alzheimer Society of Canada, Naguib Gouda, says many seniors confuse the normal signs of aging, while Elizabeth Allen, who has been diagnosed with Alzheimer's disease, discusses the benefits of early diagnosis.

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Linda Finkbeiner believes early diagnosis allowed her husband Jim to find a specialist, begin taking medication and tell his family about the disease. Playing video games is just one way Jim Finkbeiner keeps his Alzheimer's in check. Shirley Rexrode, left, assists her father, Hsien-Wen Li, who is an Alzheimer's patient, with his daily walk, in San Francisco, in this photo taken Thursday, Sept, 1, 2011. (AP / Ben Margot) Naguib Gouda, the CEO of the Alzheimer Society of Canada and Elizabeth Allen, who has been diagnosed with Alzheimer's disease, appears on Canada AM, Wednesday, Jan. 4, 2012. Shou-Mei Li holds the hand of her husband Hsien-Wen Li, who is an Alzheimer's patient, at their home in San Francisco, in this photo taken, Thursday, Sept. 1, 2011. Dementia is poised to become a defining disease of a rapidly aging population. (AP / Ben Margot) Seniors walking

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Linda Finkbeiner believes early diagnosis allowed her husband Jim to find a specialist, begin taking medication and tell his family about the disease.

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Date: Wed. Jan. 4 2012 10:20 PM ET

The Alzheimer Society of Canada is warning that too many seniors are dismissing the early signs of dementia as just "normal aging," and waiting too long to ask their doctor about their symptoms.

The society recently completed a survey of nearly 1,000 caregivers of Alzheimer's patients, and found that about half said their loved ones waited a year or longer after their symptoms began before going to see a doctor. Almost 16 per cent waited more than two years, the survey found.

Those delays can hold up care and prevent people from accessing the medications that can help slow the disease in some patients, the Alzheimer Society says.

The online survey found that the most-cited reason for delaying diagnosis was the belief that Alzheimer's disease symptoms, such as memory problems and confusion, were normal or would eventually go away.

Almost 40 per cent of respondents said they didn't take the symptoms more seriously because many of the symptoms seemed to come and go.

The most common early symptoms cited by survey respondents were:

  • Frequent memory loss affecting day-to-day function, such as continually forgetting where the person put things or what they were doing.
  • Disorientation of time and place, including getting lost even in familiar places or not knowing what month or year it is.
  • Changes in personality or acting out of character, such as becoming suspicious, fearful or confused.

Elizabeth Allen, who was diagnosed with Alzheimer's disease in 2006, wants patients who are noticing memory problems to seek help quickly, pointing out that the process itself of getting a diagnosis can eat up a lot of valuable time.

Allen says when she realized she couldn't keep track of instructions when following a recipe, she went to her family doctor first, who first checked for hormone and thyroid problems.

"We went through many things before she finally sent me to a neurologist," Allen told CTV's Canada AM Wednesday.

"And it took another year before I had the appointment. And then it took another year and half for her to finally diagnose it, because there are a lot of other things you have to rule out first," she said.

Alzheimer Society CEO Naguib Gouda says many of those who wait to ask their doctor about their symptoms regret that decision later.

"We found that once people understood the benefits (of early diagnosis), 75 per cent said they wished they had gone to see their doctors sooner," Gouda told Canada AM.

While there is no cure for Alzheimer's disease, there are medications that can work on some patients – but the drugs are typically most effective in the earliest stages of the illness.

"The earlier you have access to the drugs that are available… the more likely these drugs are to help manage your symptoms and potentially even slow down the progression of the disease," says Gouda.

Even if the medications aren't effective, there are other benefits of getting a diagnosis early in the disease's progression. A diagnosis gives patients time to alert their family and arrange caregiving. It also gives them time arrange their finances and legal affairs, before memory problems make such tasks too difficult.

The third benefit is simply the peace of mind that can come from getting a firm diagnosis. Then, if it is Alzheimer's, patients can learn more about the disease and what to expect from it.

"It's really about not suffering from the uncertainty of not knowing. And it's about developing coping skills," says Gouda.

Linda Finkbeiner took her husband, Jim, to the doctor six months after she began noticing he was getting more forgetful and less interested in certain activities.

She believes an early diagnosis allowed Jim to find a specialist, begin taking medication and tell his family about the disease.

"That early diagnosis gave me quality time with my husband," she told CTV News.

Alzheimer's disease will affect 1.1 million Canadians in the next 25 years.

The Alzheimer Society encourages Canadians to visit its Let's face it! campaign site to learn more about the warning signs of dementia and download a Preparing for your doctor's visit checklist.

With a report from CTV's medical specialist Avis Favaro and producer Elizabeth St. Philip

Comments are now closed for this story

KC-bby
said

I watched my father deteriorate from the beginning stages of Alzeimers to his death. In the first few years it was a gradual decline but then one day a doctor started adminstering prescription meds and the gradual decline became a plunge. He became violent and needed to be hospitalized. Drugs dont help! Often they make the patient worse off. How can they speak up about the side affects when they cant formulate the words. I think what we need and what our socialized medical care needs is to eliminate commisions and kick backs to doctors from drug companies. There should be whole lot more treating and a lot less sit downs with drug companies to discuss commision structures on the tax payer dime. Its all pretty evil if you ask me. No professional is immune from greed - doctors, lawyers, etc. Everybody has their hand out.


nancy
said

To Island Girl, I hope you never have to watch a love one's mind deteriorate to the point they don't even know you. Yes we all forget things but dementia and alzheimers is a whole different ball game. The study says meds will work for some but not for everyone. That is true with most medications. I attended care giver sessions a few years ago in dealing with dementia. The reason your love one can remember years ago easier than short term is because it is stored as they called it, in the memory bank. If medications can delay the process, don't write it off as rubbish. It might just be us one day.


Kathy
said

I know with my parents, it took them a long time to convince their DOCTOR to take her symptoms of memory loss seriously. This is something that the medical community should be educated about as well. Also, we need more Geriatric specialists who truly understand older people. My parents have found that doctors talk way too fast and this is really the wrong approach to take with seniors who often have hearing loss as well. To doctors: Be prepared to actually LISTEN to your senior patients. Otherwise you will miss key information to help them. Also, the subtle attitude out there is that somehow older people aren't important and don't deserve quality life as they are "old anyway". What I've seen my parents go through will make your hair stand on end. Aricept has been very helpful to my mother, but I often wonder if she started taking it about a year later than was appropriate. This was not their fault, but their doctor's as they mentioned her memory problems and he dismissed it as "just part of aging"..


Peigie
said

Perhaps another reason people don't go in for diagnosis is the malais that exists with respect to ACCESS to care (i.e. the health care system being positioned as impossibly overburdened and not able to cope with much; inadequate home care services that are affordable; no cure, etc.) Also, most of us don't want to be a burden. As our age advances and we are less able to do things and our families don't necessarily live near by, we keep trying to sustain independence and denial is one of the best means. Better education about onset and how medications can help, and that people can afford them might be a goal for some of the service agencies that we give money to (e.g. Alzheimer's)


Margot
said

My mother had dementia and we took it as aging. Then it progressed into Alz. The doctor took a few years to send her to a specialist and only then after a family situation. Three years later it turned into the bad stages and death. To the doctors I was the problem. I also tried the tests when she was given them and missed at least two but wasn't surprised as I could never, ever, remember poetry, dates in history and math formulas in school or even to this day. Does that mean I have had dementia all those years? Memory does need poking and kept in good use but 5-10 minutes recall doesn't appear to be the best solution to make a final diagnosis. Some of us have memory loss from childhood but can recall other things very clearly that 'normal' people have totally forgotten. What do you do when a doctor tells you that you probably didn't have a particular disease when a child but you had to attend the hospital for physio for 6 months? Or, how about a doctor who doesn't believe in allergies? Who can we really have faith in these days? Even specialists can be wrong. It is much easier to blame the caregiver than give bad news. Leaving notes on cupboards can also create other problems. If read at different times of day does that person think to check the time or if they have already done it. If we change our daily routines as we age does that mean we have it. Being alone, bored, no hobbies as they are too expensive or arthritis has taken over to allow crafts. What if you don't have a regular doctor only walk-in clinics available to you?


Norman Mc Namara
said

Hi, my name is Norrms from the Uk and i was diagnosed aged 50 (4Yrs ago) with Early onset of Alzheimers, since that day i have campaigned as hard as i can to get an early diagnosis recognised as one of the most important parts of this illness. Since my diagnosis i have spent so much quality time with my family and enjoyed moments i could have never belived i could have. Since my diagnosis i also founded the Uk`s (worlds) 1st ever Dementia Awareness Day and written three books, i hope and pray that more people will get an early diagnosis so they can plan for the future, and please believe we do have a future, i am living with Dementia, not dying from it, best wishes, Norman Mc Namara


ray
said

We live 3 hrs from my dad who is single so not much day to day communication.
after he had some surgery and was recuperating out our place we noticed some wierd actions from him.
After doing some investigating with people in his home town we knew that we would have to get him in a home.
To him he should not be there,he knows what is going on,but to this day he can't remember my wifes name,his grangaughters names,but he knows anyone he's associated with who is 80 years plus.
People don't ignore the fact,it is very mentally demanding for anyone involved with a dementia or alzheimers person


JLo - Moncton
said

Some of the naysayers really seem to think they know more than the doctors who specialize int he treatment of seniors withdementia symptoms. Typical ageism. Look at Betty White. She is still a vital vibrant lady in her 80s, who is working, and enjoying life. Memory loss is not neccessarily a consequence of old age. My father had some weird behaviour that alerted me to his Alzheimers- ie- giving away a large sum of money to my EX brother in law, then not understanding WHY , telling a complete stranger that he would like to shoot all frenchmen, using the F word (which he never did) leaving his car running, letting pots boil dry or setting food on fire in the microwave, wearing filthy clothing, when he was previously meticulous about grooming. He was diagnosed with moderate Alzhiemer's. The drugs he was prescribed have maintained his mind - but unfortuneately, not all of my family seems to believe his diagnosis, so he is discouraged from believing that he has Alzheimers, and that the drugs are beneficial. Some people just have a really closed mind when it comes to challenging their perceptions of the world, and seniors are a part of that world.The drugs do work if the person is diagnosed in time. Seeing Alzhiemers as something to be ashamed of, will not make researching the disease for solutions to making it more manageable any easier. Neither will denying it .


Val
said

It took my mother almost 2 years to convince a doctor that my father had Alzheimer's. He wouldn't listen to her but she knew something was wrong. Finally one day after many trips back and forth to see him he announced....." Mrs. "Jones" ...your husband has Alzheimer's".... Duh! He was then put on Reminyl.


AnneH
said

My father and mother-in-law both have Alzheimers. My father was diagnosed 11 years ago when he was involved in a short-term memory loss study through our local hospital. During the year he was diagnosed with Alzheimers, taken off the study, and given Aricept, an early stage Alzheimers medication. He has done exceptionally well on it and still lives at home with my mother. My mother-in-law was diagnosed only 4 years ago, but wasn't given the same degree of active care when she received her diagnosis. Unfortunately, she is far worse off now than my father and is waiting in hospital to be moved into a nursing home. From my experience, there are many things that one can do to minimize the effect Alzheimers can have on people; medication, maintaining/ initiating social connections, playing games, exercise, listening to music to name a few. Brain stimulation is key. Someone mentioned the cost of medications being a consideration for seniors who might not be able to afford it. I know that in my province (NS) at least, Aricept is now covered by the government.


Jim, Victoria
said

To a good majority of commentors above, Maybe, you can actually read what this disease does to those affected by it and those who have to care for people affected by it. Get your head out of the sand and stop being so 'Suspicious' of people working and dedicating their careers to giving a means for a few extra years of life to those you love.


Raj
said

I don't think this article is all about drugs as one user commented. I have a grandmother who has dementia and two people living in my community that I come into contact on a daily basis. One had early onset and tragically there was very little the drugs could do to stay the progression of the disease. Another, just diagnosed, knew of symptoms for quite some time but let running the family business override her own health concerns. My grandmother, who was in the care of another family member, had symptoms for quite some time, however, proper medical care was not sought immediately. Even though her memory loss has progressed, we have seen a marked improvement in her overall health and a steady decline in the progression of the disease since she has been given medication. I think this is an important article because in our hectic lives, we so often brush things off as as result of stress or fatigue but it is important to recognize long-term patterns that could be the result of something else. One of my biggest concerns from this article is that you have to wait so long to see specialists to get an accurate diagnosis. A year can mean a whole heck of a lot when talking about dementia.


Michelle
said

There are a lot of perople on fixed incomes who can not afford the high cost of the medications that they say help slow the progression of the dementia. I'm not really sure how affective they are either. I also agree that the tests given to patients must be improved.


island girl
said

I am suspicious of the motive and funding of the research and article. I am going through menopause and my step daughter is pregnant. We are both experiencing PERFECTLY NORMAL memory farts due to hormones. Alas, aging does bring about some memory loss as well. When you have 85 years of life to remember, that's a lot to keep straight! Each case needs to be weighed on its own merit whether drugs are advisable....I think the drug companies are targetting seniors for drugs because they don't have to worry about long term consequences (and lawsuits).........


Munro - Brampton
said

That memory test, if as you said is very wrong ! I recently read an article about memory and we have a short term memory of about 5 - 10 minutes; like when we look up a phone number and repeat it to our selves. But we will forget it later. I think of it as a temporary memory buffer. To memorize something you have to study the information and test your self for a much longer time.


KJ in Kingston Ontario
said

Must be sponsored by the drug companies -- notice the statement: may help slow the symtoms in SOME cases... And in most cases treatment accomplishes absolutely nothing but enrich the pharmacies and drug companies.


MAE in Ontario
said

They need to get better tests to determine dementia. My friend went for tests when she had some memory loss but was not that bad yet. Some of theteasts they did I knpow I would fail yet I have no memory loss. If they gave you a list of animals out of the blue and then went on to other things and 10 minutes later asked you to remember them--could you. I could if I made a conscious effort to remember when they gave them but not 10 minutes later with no warning they were going to ask later. Now those are the kind of tests they do amnd they are not a very good ones


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