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Health Minister Leona Aglukkaq talks to reporters about the Canada Consumer Product Safety Act during a news conference in the House of Commons foyer on Parliament Hill in Ottaw, Thursday December 3, 2009. (Fred Chartrand / THE CANADIAN PRESS) Dr. Paul Herbert appears on Canada AM from CTV studios in Ottawa on Tuesday, Sept. 14, 2010.

Feds still open to funding MS treatment studies: Aglukkaq

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Canada AM: Dr. Paul Herbert, CMAJ
The Editor-in-Chief of the Canadian Medical Association Journal says it is premature for patients to seek the liberation treatment, as the data collected is sparse. He adds there is very little evidence to prove the treatment works.

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Health Minister Leona Aglukkaq talks to reporters about the Canada Consumer Product Safety Act during a news conference in the House of Commons foyer on Parliament Hill in Ottaw, Thursday December 3, 2009. (Fred Chartrand / THE CANADIAN PRESS) Dr. Paul Herbert appears on Canada AM from CTV studios in Ottawa on Tuesday, Sept. 14, 2010.

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Health Minister Leona Aglukkaq talks to reporters about the Canada Consumer Product Safety Act during a news conference in the House of Commons foyer on Parliament Hill in Ottaw, Thursday December 3, 2009. (Fred Chartrand / THE CANADIAN PRESS)

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Date: Tue. Sep. 14 2010 3:17 PM ET

Canada's health minister says the federal government is still open to funding clinical trials on a controversial treatment for multiple sclerosis, despite perceptions to the contrary.

Leona Aglukkaq says the federal government "has never said no" to federall-funded clinical trials and that the media have left Canadians misinformed about Ottawa's intentions.

"What we've said all along is that there are studies underway -- seven research projects that we announced. We hope to... accelerate the development of a pan-Canadian clinical trial," Aglukkaq told reporters in St. John's, N.L. where she wrapped up meetings with her provincial and territorial counterparts.

Aglukkaq said Canada will move forward with countrywide trials as soon as she receives findings from seven research projects announced in May. She said preliminary results are expected within a few months.

Aglukkaq says the provinces are "on side" with Ottawa's plan, even though some are moving ahead with research projects of their own.

On Monday, Newfoundland and Labrador announced plans to fund a study to observe how MS patients fare after getting the liberation treatment, a procedure to open blocked neck veins in an effort to relieve some symptoms.

The treatment is based on a theory put forward by Italian doctor Paolo Zamboni that a condition called CCSVI causes narrowed neck veins, which leads to iron deposits in the brain.

The Newfoundland government will not pay for patients to have the treatment performed; only to record what happens to those who undergo the treatment on their own.

Meanwhile, the editor-in-chief of the Canadian Medical Association Journal says he's pleased that while provincial health ministers are interested in studying the liberation treatment, they won't yet fund the treatment.

Dr. Paul Hebert says the decision -- reached Monday at two days of meetings in St. John's -- shows the ministers are interested only in evidence-based medicine.

"From my perspective, the premiers did a very good thing," Hebert told CTV's Canada AM Tuesday.

"They listened to the patients, they listened to the people who have very a desperate need for cures and treatment and what they suggested… is they are willing to put together the plans for eventual clinical trials. They want to help support research on the way to doing the right studies."

The ministers said they would work together to explore ways to move toward clinical trials of the "liberation treatment," but only when and if the evidence is available.

The treatment is based on a theory put forward by Italian doctor Paolo Zamboni that a condition called CCSVI causes narrowed neck veins, which leads to iron deposits to build up and damage brain cells. Zamboni believe that unblocking the veins will help MS sufferers.

The health ministers have been grappling with whether to fund their own studies into the theory, now that the federal government announced earlier this month that it would hold off on funding clinical trials into the theory.

Ottawa's decision has been met with outrage by some MS patients, who say the only way to clear up the questions about the treatment is to fund high-quality trials.

But Hebert says he agrees with the decision by the Canadian Institutes of Health Research not to fund studies yet, because there isn't enough data to show that it is either worthy of further study or safe.

"I think at this point, it's very premature for patients to go out and get this," Hebert said. "The data on using it is very sparse. We know very little about whether these blockages have any relationship to the disease."

Comments are now closed for this story

Stella
said

A blockage is still a blockage problem, if relieving the blockage will help something somewhere then fine. How about treating the blockage instead of the MS thing, if it relieves the MS sytoms then ok fine, it will help circulation problems as well.


Pamela DiDonto
said

OK, do the the testing on MS Patients to see if the blockages occur in those patients. At least there is a common denominator. Then pool the candidates who qualify for the procedure. By that time more Trials or Research from other countries have further their observations of the procedure that were completed. I feel that everyone else but canadians are ahead of the game. However this is not a game, these are people lives. At this point, just test the people to find if the blockages occur. Then when Canada is ready you already have your candiddates. Besides MS or no MS if I have vein blockages I want them unblocked. What is very fustrating is that this is suppose to be an easy procedure but I know risks are in any procedures. At this point indications are given that a cure does not want to be found, why , lost jobs, lost chariable donations ect. Get Serious here. Prove that I am wrong. As time passes I don't feel/see that they are progressing i n research because MS Clinc London Ontario has not informed me on any progession in research and in my case which is 24 years, they don't have enough information. Well I am ready and willing to be tested and pay for my own procedure. Just give me a call.


Dante
said

Jenny said: "I'm fairly certain that, while it may be unpalatable for people to hear this, that the government and the CMA aren't rushing to fund Liberation research because they're fairly certain that an alarming number of the MS diagnoses made were actually Lyme disease. The CMA is going to protect its billion dollar protection fund at any and all costs."Jenny, where do I even begin with this psedo-scientific nonsense? Lyme disease presents with a very characteristic rash that does NOT appear in MS. The two disease processes are COMPLETELY dissimilar. Saying that MS is like lyme disease because they both can have neurologic involvement is like saying gunshot wounds are like a rash because they both involve the skin. As for this "billion dollar protection fund," I think you'll find it with a pot of gold at the end of the rainbow. Perhaps the CMA is using a cautious approach beacuse it realizes there is nowhere near enough evidence to prove that this procedure actually works! If doctors were to recommend this procedure to MS patients based on no evidence, we might as well tell cancer patients to start drinking "miracle water" because it will cure them! Why give people false hope and submit them to an invasive procedure if there is no real evidence it works?


Brenda Belliveau
said

I was diagnosed with MS in 2004. Since then I have gone from relapsing/remitting to secondary progressive MS. It is frustrating that we had to close our business. Now I can no longer walk. I really hope that our premier will join the campaign!!!!!!!!!!!!!!!


Jenny
said

I'm fairly certain that, while it may be unpalatable for people to hear this, that the government and the CMA aren't rushing to fund Liberation research because they're fairly certain that an alarming number of the MS diagnoses made were actually Lyme disease. The CMA is going to protect its billion dollar protection fund at any and all costs.


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