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Federal agency won't yet fund studies into MS theory
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CTV.ca News Staff
Date: Tue. Aug. 31 2010 6:25 PM ET
The Canadian Institutes of Health Research says it's not yet ready to fund new studies to test the "liberation treatment," a controversial approach to treating multiple sclerosis.
CIHR President Dr. Alain Beaudet told reporters Tuesday that after reviewing the research so far on the treatment, and after consultation with neurologists, radiologists and other experts, "there was unanimous agreement from the scientific experts that it is premature to support pan-Canadian clinical trials on the proposed 'liberation procedure'."
"There is an overwhelming lack of scientific evidence on the safety and efficacy of the procedure, or even that there is any link between blocked veins and MS," he said.
Without sufficient scientific evidence of the procedure's safety, it would not be ethical to study the procedure at this time, he said.
The CIHR did say it would establish "a scientific working group" to monitor and analyze results from seven liberation treatment studies, sponsored by the MS Society of Canada (four of those studies are from Canada and three are from the U.S.), as well as from related studies from around the world.
When the final results from those studies are available, the working group can then recommend further studies, "including, if appropriate, a pan-Canadian interventional clinical trial," the CIHR said.
The Multiple Sclerosis Society of Canada has been cautious about the new theory, saying a lot more research is needed.
In June, the society and its U.S. counterpart awarded a combined $2.4 million in research grants aimed at investigating Zamboni's theory. Four Canadian universities and three American centres will begin research later this year.
The CIHR decision not to fund further studies will surely disappoint many MS patients who have called for immediate research into the treatment ever since CTV's W-Five aired two reports on the controversial treatment.
MS patient Ginger MacQueen, who had the treatment in Poland and says her MS symptoms improved enormously, says the decision will simply drive more patients to foreign clinics.
"They are going to go abroad. They are going to go to Poland, or to the States or any other country that is doing angioplasty and they are going to get treatment there because our country refuses to act," she says.
The "liberation treatment" is based on an unproven theory proposed by Italy's Dr. Paolo Zamboni, which contends that many MS patients have a vein condition dubbed CCSVI (chronic cerebrospinal venous insufficiency).
The theory holds that CCSVI leads to blocked veins in the neck or chest which causes blood to reflux back into the brain, leading to the symptoms that mark MS.
Earlier this year, editors at the Canadian Medical Association Journal joined the "liberation treatment" debate, encouraging MS patients to demand more research into the theory. But they added that new research funding should be allocated based on evidence, not political or patient pressure.
With dozens of MS patients going overseas for CCSVI treatment -- at their own expense -- many patients have organized petitions calling on the federal government and their provincial governments to fund studies and treatments.
While a number of provinces have said they would fund clinical trials into the treatment, so far, no studies have been approved.
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Comments are now closed for this story
Dawn S.
said
Liz
said
BrianLight
said
If you have MS or are a family member of some one with MS and you feel this decision is unjust I advise you check out what is happening at angioplastyforall.
Natalie
said
Bless the internet, it remembers everything. At the point when CCSVI tests out as an intrinsic component of the MS process, it's going to be too late for a lot of sufferers, but there's also going to be a big, nasty downfall for the MS Society and their current advisory panel. I only hope that it's very humiliating, very public and very complete.
Doug # BC
said
Seriously
said
Pound sand! You have no idea what MS is like, You have no concept of how difficult the most simple tasks can be. Before you, as a non-MS person I'm assuming, rush to support the CIHR you should really educate yourself with more literature before posting something so callous.
Albertaboy111
said
Liz
said
@Anne M- you obviously do not know anybody with MS. When they look at the results other MS'ers have had, they jump on that ray of hope!
Jim in Twillingate NL
said
Will
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Bryan
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Kelly Bartkiw
said
vein - any old blocked vein - and see how much better the engine runs! This isn't new!
Paul
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Susan Fairbairn
said
VERY SAD
said
Kris
said
I understand not rushing into things and making sure that it won't do more harm. But it does appear that the treatments are successful. I just hope that they don't wait too long.
Diane
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D Lloyd
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Sandra McIntyre
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D Lloyd
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choyce
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joyce manning
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Penny
said
There has been so much more data coming out worldwide including an abstract of a new paper by Dr Simka (Poland). The CIHR is completely blinkered. I am so fedup with Canada on this issue.
Steve
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Deb
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Betty Ann V - North Vancouver
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Jablonski
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BCson
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Mary
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Anne
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Terry
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Elizabeth
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Graeme McLean
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Mary
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peter in MB
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Shawn
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Jin in Ottawa
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Curtis Brooks
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Gregoryd
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Sue
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Jonathan
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Anne M
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